In the Midst of Winter

 “In the midst of winter, I found there was, within me, an invincible summer. And that makes me happy. For it says that no matter how hard the world pushes against me, within me, there's something stronger – something better, pushing right back.” ― Albert Camus.

As I sit to write today, it is still winter in my new home in upper New York.  In some ways, it feels as though it has been winter for months now.  It is, in fact, almost a year to the day when, at that time still in UT, it became obvious to me and my friends that we should cancel gatherings and practice stay at home strategies to protect ourselves and each other from the corona virus.  In fact, as a friend just reminded me, March 10, 2020 was the last time we gathered to celebrate another friend's birthday.

One year, and here I am.  Looking out across the remnants of several snowfalls, out to a bank of evergreens.  Looking out across a new living space, in an apartment for the first time in over 40 years, typing in a stillness broken only by the sound of of my breathing, the hum of one of the several space heaters employed to break the chill I cannot seem to otherwise dispel, or the creaking of the footsteps of upstairs' neighbors I've yet to meet.  

The boxes of belongings have all been opened, though piles exist in almost every room, waiting for my final decision - do I keep or do I let go?  For I have brought more than I need, more than I can use, and, increasingly, more than I want.  

Rufus has adjusted well, perhaps even more quickly than I did.  He has learned to climb the stairs that I bought for him when I could hear myself question how long I would be able to lift him into bed.  He sleeps there now as I type.  He has become attached to my sister, the main reason I decided to move this past fall.  And no, he doesn't like the snow which is a good thing.  As small as he is and as high as the snow drifts have been, I would have had to dig him out had he gone romping into it.

I would be remiss if I did not admit that this move has been harder than I expected.  For almost two months my belongings remained in Utah while the search for a van driver went unheeded.  For almost two months we lived with my sister and brother-in-law who were generous, loving and supportive.  But for someone who has been independent for over 40 years, these were a long two months.  And for someone who has lived in a house for over 40 years, apartment living has been a challenge to my creativity and an adjustment that is only getting easier now.  

And then there was my birthday, my 80th birthday.  The birthday John and I had talked about in recent years as an occasion to host a big party as we had done for my 50th.  Followed the same week by Valentine's Day.  Alone.  With too much time and space to dwell on past birthdays and Valentine's Days with him, taking the entire week to celebrate, to read the beautiful cards he would send, cards I came upon opening the last box.

Then, yesterday, a message from someone I hope will become a new friend calling me amazing for having the courage to move across country, by myself, at this stage of my life.  So, I took pause to let that in.  To write in my personal journal this morning all that I have accomplished since moving in.  All the boxes unpacked, all the services I have found, the hard decisions I have made, the many ways I've reached out to stay connected, the new ways I am using technology, the environment I am creating to sustain and nourish myself and my little Rufus.

I also took time to acknowledge all the help I've received - from  the staff in the leasing office and the young handymen who put together shelf upon shelf and took apart box after box, to new insurance agents and clerks in the grocery and hardware stores, and strangers who, hearing I am new to the area, have been warm and welcoming.  Mostly, to my sister and brother-in-law who have welcomed me with open arms and generous hearts and to all my friends who call and Skype and Zoom and send notes to remind me that I really am not alone.

So, amazing?  I'm not sure.  But strong, yes.  Courageous, yes.  Creative, yes.  Determined, yes.  Optimistic, yes.  And certainly, blessed.

Who Will Remember?

"I never wanted to be the eldest."

~ Ben Magestro

I haven't thought of this comment in years.  Many years.  Dad made it at the news of the death of his remaining older brother over 25 years ago.  Dad was just about the age I am today.  I didn't pursue the comment.  Maybe it was because I am the eldest child and grandchild and had never given it much thought at the point.  Maybe I feared I'd make both of us uncomfortable discussing why he felt that way. Maybe I arrogantly assumed I understood. Whatever - I just let it pass, one more comment to file away. 

Until recently, when I caught a video of my remaining uncle, now in his 80's, suddenly frail, undoubtedly old.  In the weeks that have followed, my dad's comment has popped up at the most unexpected moments.  Finally, I suspect I understand.  When this uncle dies, when I am the eldest in the clan, who will remember?

For, it's not only that this uncle is the last of his generation.  In many ways, he was more an older brother than an uncle.  We lived under the same roof at the end of World War II.  He consoled me and tried to protect me when the stress of that household at that time was too much for a little girl.  He took me trick or treating.  He fixed my plate at the buffet when we celebrated my great-grandmother's 100th birthday.  He was there when I was baptized, and when I received Holy Communion.  He remembers the day Grandma gave up her icebox for a refrigerator, what it took to keep the coal burning furnace going, the snowstorm that crippled the city in 1947.

He was the first male in the family to get a college degree; I was the first female.  He was the first to leave the city and his family to serve in Korea.  I was the first to leave the city and never return.

When he dies, there will be no one left who knows where I began, who can appreciate even remotely what it has taken to be who and where I am today. There will be no one else who remembers. I'm not sure this is what Dad meant when he made that comment so many years ago.  But I rather suspect I'm in the ballpark.

I know there are scientific reasons given for why we older folks begin to dwell on memories of our younger selves.  But what if it isn't also that we reach a point when we are the eldest and there is no one else who remembers?

Because He Listens

"The first duty of love is to listen."
~ Paul Tillich

I write this as we approach our 35th, and I fear our last, wedding anniversary.  We met 38 years ago, Aug. 18, 1980, to be exact.  In a bar in Kansas City, as the song goes.  Just 15 minutes before I had determined to leave.  I was there with a colleague, sharing with her the highlight of a long road trip I had taken alone, so proud of what I had done.

John walked in with a friend to celebrate a successful business transaction and sat at a nearby table.  His first trip to Kansas City, he asked a question of his friend that the man could not answer.  But I could, and without much thought, did.

We continued to talk - about the city, and then work, and backgrounds and interests - and he listened, at a level I had rarely experienced.

When we parted, we exchanged telephone numbers in case I ever got to Cleveland, his home base.  In case he ever visited Kansas City again.  Which I seriously doubted.  

The next day, I told my mother that I had met someone who, though I was sure I would never see again, gave me hope that there might be someone with whom I could build a lasting, supportive relationship.  In fact, I told her, were we to live in the same city I was sure we would end up married.

He called the following Sunday morning just to talk.  And he listened.  As he did every Sunday morning for weeks.  And eventually every Wednesday evening, and eventually every night.  As he did throughout the challenges of determining how to create a lasting relationship across miles and different careers, across different backgrounds and commitments, across significant hesitations and considerations.  Somehow, even when he became most fearful or I became most frustrated and angry, he strove to listen.

And I came to realize that for all the reasons I had come to love him, at the top of the list was that he always listened, no matter how difficult the conversation.  I moved to Cleveland, and we married in l983.

That foundation of talking and listening through the tough conversations has served us well.  Sustained us through several moves, career changes, presidential campaigns, caregiving for my elderly parents, and battles with cancer.  It continues to be a basic survival skill as we deal with this, the greatest challenge we have ever faced, the most difficult conversations we have ever had to have.  Still, he listens.  I have never loved him more.

Random Acts of Kindness

"Unexpected kindness is the most powerful, least costly, most underrated agent of human change."

~ Bob Kerrey

I woke this morning to a damp and dreary day. A good day to rest, read, and reflect - especially since we are still recouping from our recent trip to MD Anderson Cancer Center.

This trip can take a lot out of us. It's not just that air travel has become more difficult. It's also the emotional stress of not knowing what we might hear from the hematologist, the physical stress of pushing John everywhere in a wheelchair, the physical stress for him of yet another bone marrow biopsy.  And when we're done, managing another day of travel and our morale for at least another week until we receive the biopsy report.

We've made this trip three times within 17 months. Each with a similar routine, yet each yielding radically different reactions. The first visit we met with the hematologist assigned to us, an austere Russian trained research physician, whose honesty bordered on bluntness, a shocking confrontation with reality while we were already shell-shocked. By our second visit, she was warmer, gentler, but the news she delivered still bleak and unpromising. Still no cure on the horizon. No appropriate clinical trials available. And her concern for John's appearance disconcerting. The biopsy took two attempts, and the results still were inconclusive. Overall, every bit as challenging a visit. Maybe even more so.

It was a surprise, therefore, when we both affirmed as we left our accommodations that this trip was a much more positive experience even though we couldn't pinpoint why at first. Yes, our doctor was even warmer, more personable, more patient with our questions, clearer with her answers.  But still no cure, no appropriate clinical trials. The biopsy went smoother. But still no results yet.

And then it hit us in the airport as someone offered to help with our luggage. This what was different. The constant stream of kindness that had enveloped us the entire trip. People who lifted luggage without being asked. People who held doors and offered help with the wheelchair. People who not only gave directions but walked with us to be sure we were headed the right way - and not because they were paid to do so. People who smiled first. People who genuinely seemed pleased to see us and willing to listen. People who reminded me with every gesture that there are wonderful, kind and decent people all around us.

Simple, unrequested, unexpected acts of kindness. I'd like to think I would always be aware of and grateful for them. But I suspect they have meant so much more because I am so much more aware of our fragility, so much more susceptible to cynicism and despair. Powerful, inexpensive but not underrated in this household.

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One Step at a Time

"Mountains cannot be surmounted except by winding paths."

~ Johann Wolfgang Von Goethe

As much as I love a good quote and have notebooks and computer files filled with them, I have committed very few to memory.   This quote by Goethe is the most recent.

In reflecting on how few I have memorized, I realize there are three reasons a quote makes the cut - it conveys something I already believe but with fewer and more impactful words, it evokes a feeling or belief I wasn't aware I have, or most importantly, it challenges and impacts the way I am thinking.  This quote falls into the third category.

Prior to coming upon the quote, I was most influenced in the way I think about life and its challenges by a transaction with a friend in December l999.  We had just moved to Vegas with my mother, who was grieving the sudden death of my dad that October.  Determined to give her a decent Christmas and reassure her that this was now her home, exhausted and grieving myself, I nonetheless pulled out all the stops and decorated the house (with many boxes still unpacked in the garage) and invited friends for a holiday party.  

The evening hadn't progressed very long when my friend pulled me aside to paraphrase the Breda O'Connor quote and remind me that my future as my mother's caregiver was a marathon and not a sprint - a simple, immediate, and effective image for me.  So effective that I clung to that image for the next 18 years, through caregiving for mom, my battle with breast cancer and John's stem cell treatment for non-Hodgkins Lymphoma.  And it served me well.

But today, soon to be 77, once again a caregiver, the metaphor or image of running a race, even if a marathon and not a sprint, is no longer helpful.  Not that I would have recognized this were it not for stumbling on this quote.  Somehow the image of walking a winding path feels more congruent with my experiences these past 18 months since John was diagnosed with a currently incurable form of MDS.  Plugging uphill, with unpredictable switchbacks, dips in the road, obstacles to be cleared or avoided, moments when I can barely breathe, the path ahead poorly marked - yes, a winding path up a mountainside.  The more I have reflected on this quote, the more validating it has become.  The more helpful it looms for the months ahead.

I don't know the shape of the mountain ahead of us or how far up the path we will make it together, but I do know, without a doubt, that it will be winding and circuitous, in spots even treacherous.  I do know that we can and will take it one step at a time.

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It Was a Very Good Day

"How beautiful a day can be when kindness touches it."

~ George Elliston

I made a promise to myself at Thanksgiving that this holiday season, possibly our last together, would be one of our best, something for John to brighten his days, something to cherish for the rest of my life.  I made lists of possible activities, moments that could qualify as special, places we enjoy, meals I'd prepare - and I don't like to cook.  That weekend I took extra care to create festive touches in every room, even the bathrooms.  I spent an entire day just on the Christmas tree.  And crossed my fingers, hoping that my vision would become reality in the following weeks.  Hoping I'd hear him say that this was the best holiday ever.

Then, unexpectedly, unplanned, the telephone call from old friends, friends of three-plus decades.  Friends whose wedding we stood up for 32 years ago, friends whose conversations pick up where they left off even if months go by without contact.  Could they come out for a visit?  

They arrived last week.  And we did what old friends do - got caught up on each other's lives, shared wine, ate out, gossiped, laughed, reminisced, offered help without being asked for it, wished we lived closer.  And each of the three nights they were here, John commented to me, "This was such a nice day."  

Each day was a nice day, but I will cherish one in particular.  The two men went off for the day, a special treat for John, a day to spend with this man who in many ways has been as much a younger brother as a friend.  A chance to say things he might not say to me for wanting to protect me.  A chance to say what each needed to say in case this would be the last time they saw each other.

And they did just that.  When I asked John what they had talked about, at first he answered simply, "Love."  And then, "Of our love for one another and our special bond and how much I have touched his life." And then, "I cannot tell you what that meant to me.  To know I made such a difference to such a good man."  

There are other memories to create this holiday, but we have already had our Christmas.  John's days are brighter, I will always remember our conversation and cherish the man whose kindness and support made it possible.  A very good day, indeed.

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Reflections on Christmas Past

"Christmas is a season not only of rejoicing but of reflection."

~  Winston Churchill

I woke the other day with the sudden realization that this is my 76th Christmas and a flood of childhood Christmas memories washed over me.  For no apparent reason.  No dreams that I could recall.  No family traditions binding me to the past.

Then again, I have been decorating with a vengeance and friends have called to say they will be visiting.  And I have indulged in more than a few Hallmark holiday movies.  You know the ones, filled with romance and fantasy, ideal families and happy endings.  Simple plots and enough good cheer to last all year.

Our family was not filled with good cheer.  Money was tight. Relations could be strained.  But, somehow, we were at our best at Christmas.  

I loved watching my mother bake cookies for weeks starting right after Thanksgiving.  Enough chocolate chips and pecan snowballs, Spritz and sugar cookies, pinwheels and ladyfingers to fill the turkey roasting pan and several large bowls.  All made with real butter and leaving an aroma that filled the house for weeks.  Enough to give packages to all the family who came to visit.  And they came - all six brothers of my dad, and the two brothers and a sister of my mom, and their children.  They flowed in and out for days.

I loved decorating the real tree, purchased only a week or so before the holidays and laden with family heirlooms and silver tinsel that had to be layered a string at a time - I remember feeling so grown up when I was finally allowed to do so.  And the cards, checking the mail every day to see if we received a card from someone Mom had sent one to, her cards signed in red ink for the season.  She would read them, looking for a message, and then tape them to the archway to the living room.  And count them, every year.

The other sure sign of the season - the music.  Not only did Mom enjoy the traditional Christmas carols, (well, I think Rudolph was tolerated), but once we attended Catholic school, I sang in the church choir.  And Midnight Mass was the second time Dad could be dragged to church, Easter being the other.  Such a treat to get "dressed up" and sing before my parents.

And of course, the food.  Both Mom and Nonna were great cooks.  We celebrated Christmas Eve with Nonna who made pizza, from scratch naturally, and fried the leftover dough and rolled it in sugar, a treat for the grandkids.  Then, returned for Christmas Day to a feast that took days to prepare and almost as long to clean up after.

Gifts were simple - coloring books and crayons, puzzles, roller skates, a game.  And always pajamas and for me, and later my baby sister, a dress that Mom sewed.  Gifts that appeared while we were at Nonna's.  Gifts that I discovered Mom and Dad had bought when I finally noticed that Santa's name was always signed in red ink.  Gifts that were given and received with love and appreciation.

We were at our best at Christmas.  I think I'll bake cookies this year.

Cherish Is the Word

The word cherish is in my reading vocabulary, but not much in my speaking or writing.  Oh, I had promised it would be 15 years ago when I fought breast cancer and realized how many people cared about me.  When I noticed how much I hadn't noticed.  When I vowed I would be more present, more attentive, more grateful.  When I realized how much I had to not only be grateful for, but to cherish and cherish deeply.  For, to be grateful for a red rose or a pretty sunset, to be glad a friend called can become an intellectual exercise, a momentary acknowledgment, a good habit, but a habit nonetheless.  

My intention was confirmed and reaffirmed when, two years later, John was diagnosed with non-Hodgkins, and he received his stem cell transplant.  And survived.

I'd like to say I've lived the dozen or so years since then having kept my promise to myself, but I haven't.  I became distracted, caught up with retirement, and moving, and planning and preparing, more everyday tasks and chores.  I didn't even catch myself up short when John was diagnosed again a year ago.  After all, more tasks to get our "house in order."  More planning and preparation.

Then, last weekend a series of sweet, small events gave me pause.  Telephone calls from old and new friends to see how we are holding up.  To remind me they are here for us.  A visit with dear friends who were about to move.  And another from friends we left behind when we moved.  Hugs and words of endearment and encouragement.  And tears that flowed for days - with sadness and gratitude.  So much, so many to cherish.  How could I have forgotten?

Why does it take a crisis for some of us to remember?  To cherish what we have now.  To cherish deeply what we have now.

Standing in a Hammock

"So, how was Houston? What did you learn?"  "How is John?" "How are you holding up?"

Today, three weeks since our trip to MD Anderson Cancer Center in Houston, I would answer these questions somewhat differently than when we first returned, having the advantage of hindsight.  First, Houston was in better shape as a city than we had anticipated, remaining water viewed more from the air than in the area of the Center.  The Center itself as busy, as challenging to navigate as ever.  The sight of so many folks in distress as difficult to handle. 

But for us, the fact that they could not get a sufficient bone marrow sample added stress and uncertainty as we had traveled there specifically to check the progress of John's disease.  What we did learn was that currently there were no clinical trials available to pursue.  And that we would have to wait another week for whatever further information could be retrieved from the sample.  The best advice we received was to resume monthly chemotherapy treatments.

I would have said on the morning we left Houston that nothing much had changed as a result of the trip.  And then, in the airport, waiting for our departure, I heard John tell a friendly stranger that he has an incurable cancer and is not sure he will survive another year.  Something I had never heard him acknowledge before, even at times seemed unable to acknowledge.  It broke my heart - and it was such a relief.

For, it has been very challenging for me to hold the reality of this prognosis without impacting his optimism, his conviction that he could endure this long enough for a cure to be found.  That, at least there might be a clinical trial that would provide a better treatment plan.  After all, he beat cancer before. That optimism, however, has been an obstacle to getting our "ducks in a row" should he or before he loses this battle.

Oddly enough, admitting this is a possibility, even a probability has decreased our stress and anxiety.  Rather than be depressed, it has brought us both a sense of calm relief and purpose.  And subsequently, we have adjusted our expectations and aligned behind a commitment we can manage.  We are focusing on three months at a time and a laundry list of to do's that keeps us grounded, energized and in tandem.  

So, how am I doing?  I told someone recently that I'm learning to ride the waves.  "No," she said, "you're learning to stand in a hammock."

And John, well, he recently reminded me that doctors could be wrong.

When You Need Somebody - Part I

"Tell us - from friends, loved ones, and even acquaintances- what does help/support/relief/kindness really look like?"

I've been mulling this question from my friend, John G., for the past few days.  He suggested the answer might make a good post here.  After giving it a lot of consideration, here's my first attempt.  Not a definitive description because I don't think there is one.  At least I don't have one.   What I will share, for now,  is what I am learning about support.

~ What support looks like not only varies from person to person but also for any one person, depending on the challenge and when it appears.  When John was battling non-Hodgkins, we lived in Houston, in an apartment near the hospital.  I didn't have to cook or clean and we were 12 years younger.  I needed very little physical help as compared to today.  But I could have used more emotional support; maybe I just didn't understand that I did as much as I do today?

~ There may many people who will offer to be of help, and though some may offer only as a courtesy, no one is a mind reader.  Unless someone knows you very, very well, they cannot know what you might need and what you will accept. Even if they know, a new situation may require a level or kind of support neither of you recognizes.  I've found it helpful to me and those who would support me to list all the ways someone could help me physically, intellectually and emotionally.  It led me to make many requests I would not have otherwise - asking our window cleaner if he would take down all items from upper shelves so that neither of us needs to use a ladder anymore, replying to a friend who asked me what could lift my spirits that day -"flowers", or to another "a regular luncheon date at a spa."

~Which brings me to my last point (for now), and perhaps the most important - support, help, assistance, however you refer to it, is as much related to whether or how well you accept it as to whether or not it is offered.  In the past, my pride was an obstacle to receiving the support I wanted.  Sometimes, I thought it a sign of weakness or incompetence to admit I needed help.  Sometimes, I'm embarrassed to say, I thought I could do it all or better. Experience has taught me otherwise. Sometimes I just didn't know what I needed. And sometimes, even today, I get too overwhelmed, too caught up in anxiety and fear to even recognize what is being offered.

Well, John, my friend, your question has instigated some serious thought. I recognized even as I started to compose my reply that there is much more I want to add - so there will be a Part II.  In the meantime, I welcome comments, questions, and other ideas.  Support each other?  What a wonderful idea.

Little Things Mean a Lot

Recently, I posted on Facebook -

"A day of simple pleasures...cutting roses in our backyard, a lovely lunch with a fine friend (and a crepe and creme brulee to boot), finding a tiny treasure for my office, an afternoon nap, and a bowl of popcorn while watching the World of Dance with John, who's had a good day too. And off to bed with a good mystery - I'm a happy camper."

I doubt I would have written something like this 20 years ago.   Is it because my world has become smaller and more confined?  Is it because our lives have become consumed by handling more important things?  Is it because the bigger issues in my life are looming as so beyond my control? So far beyond my control that to pay attention to the little things is a matter of survival? 

Or is it simply because I'm older and wiser? Which, of course, is the explanation I prefer!

No matter.  Whatever the reason or reasons, 

• having a good piece of chocolate, well anything chocolate
• seeing a movie with a friend
• watching The Voice or So You Think You Can Dance with John, critiquing the whole way through
• taking the time to enjoy spectacular coral desert sunsets
• journaling on the courtyard chaise in the morning when the only sound that interrupts my concentration is our friendly pair of mourning doves
• laughing at a sacrilegious Facebook post, well laughing in general
• cleaning out a drawer or shelf - I can hear the disbelief now - "you find that pleasurable?" I do, I do.
• watching a baby play, whether a human baby or a puppy or a kitten, a baby
• reading good writing
• hearing John laugh
• holding hands
• learning how to do something new, but especially anything on the computer - John can hear my yell of triumph anytime I figure out something for myself.
• receiving an e-mail, message or phone call from an old friend
• hearing "I love you" and knowing it's true

I can regret that I didn't learn how important or how satisfying this when I was younger, but that's a waste of time.  I'd rather pay attention to these little things.

I Hope Life Has Been Good to Her

I haven't thought about her for years.  I doubt she would remember the dinner she prepared 40 years ago as a favor for a mutual friend who was deeply concerned for me and thought she could be of help.  In the midst of debilitating panic at the prospects of living alone for the first time after a nasty divorce, I, too, was concerned, and thus, very grateful for the invitation.  Hoping she, indeed, could be of help.  

I don't remember her name.  I'll call her Sara. Our friend said Sara was ahead of me in the stream of 70's divorcees, swimming with grace and serenity.  Walking into her home, I could feel the peacefulness immediately.  After our meal, she got straight to the point. This I remember vividly.  "Mike says you are struggling with living alone and hopes I can offer some good advice.  Well, I'm no expert, but these three things work for me, a career I love, friends of the same sex, and hobbies or interests that fill the empty hours."  Simple. Straight to the point.

Well, I was teaching and loved it. I had a group of female friends from among neighbors and colleagues, who supported, and worried about me. But hobbies, interests? All my interests had been directed by my ex. So I thanked her, not adequately I'm sure, and set out to develop my own hobbies. And never saw her again. I eventually settled on needlepoint,  needle pointing a pillow for everyone I knew. Eventually, settled into a modicum of comfort in my singleness, but more importantly, gained the confidence that I could and would do so eventually with my own style of grace and serenity.

So what triggered this memory?  No single comment or event, but rather a series of events that took place this week.  A week of daily contact with friends, old and new. A week of sharing memories, tears, laughter, good food, serious conversation, fears and hopes and even a few interesting possibilities for the future.  A week that has culminated with suddenly remembering Sara and thinking of how, 40 years later, I would respond to her advice.

Some of the contacts this week were extemporaneous - e-mails, Facebook posts, a telephone call - from friends acquired along my career path, some friendships over 25 years old. Others - the newer St. George friendships - had been planned for some time.  My monthly luncheon date with a friend in her 80's, who shared her dream of seeing Alaska some day, and opened the possibility that we might do that together.  The next day, lunch at a local spa with a friend in her 50's, Grasshopper to my Sensei. Discussing my plans for the future, she sparked an idea for a  project I could become passionate about.  Asked how she might be of personal support in the days ahead, we committed to a monthly luncheon, at the spa, of course.

Then, there were the gatherings.  A monthly meeting of a group that has been meeting for two years now, pulled together in the hopes that these women would be a bastion of support in the inevitable life crises that, indeed, have begun to emerge.  Aging from 65 to 82, with a fount of knowledge and expertise and a bottomless well of compassion, they have become the haven we hoped for two years ago. For me, for sure. Then, today, lunch with friends to discuss Hillbilly Elegy, four "senior citizens" who share a love of reading and learning, 

So, how would I respond to Sara's advice today? At 76, retired, with perhaps too many hobbies, I would say friendship has become the most important, enduring element for me in living a satisfying life, whether alone or with a mate.  I would add, that especially as I have aged, I value a web of friends of different generations and different interests.  That though it is tempting, especially in today's divisive, hostile environment, to surround myself only with people who think and believe as I do, the diversity of age, interests, and viewpoints keeps me engaged and invigorated. That I need friends to cry with, and friends to laugh with, too. That I need friends who share a piece of my history, friends who nurture me in the present, and friends who help me face the future.

I take comfort in knowing I have created just such an elaborate web of friendships over the years, largely by remarkable good fortune, surely not by conscious design.  I don't know how Sara has fared.  If she would amend her advice as I have.  I hope life has been good to her. I hope she is surrounded by a web of loving, nurturing, diverse friendships.

Illegitimi Non Carborundum

It has been almost eleven months since John was diagnosed with Therapy Related MDS, a relatively new and currently incurable cancer of the blood.  Our initial prognosis with six months extended, thanks to a second opinion, to two years.  These months have flown by, but looking back, I am proud of how we have settled into a "new normal" - a daily way of living with this new challenge.  A new normal marked by grace, partnership, support and a quality I've come to recognize as resiliency.

Resiliency - elasticity, malleability, flexibility, plasticity, buoyancy - I've long recognized this in John.  With a history of non-Hodgkins that required the stem cell transplant that is the cause of his current illness, five hernia operations, three bouts of skin cancer, and macular degeneration, one might expect him to rail against the heavens or to just give up or give in. But he endures.  He keeps getting up.  He takes a day at a time and never relinquishes the fight.  He stays remarkably present and positive. He remains optimistic and reminds me that he's not a statistic.  He reminds me, too, that he beat the odds once, and he can do it again. That he can endure until there is a breakthrough that will extend his life with me.

What I haven't recognized is that his resilience has rubbed off on me.  I've thought of myself as tenacious, strong, and determined; and those are not bad qualities. But I like resilient better.  It's more fluid, less easily bent or broken.  Definitely an asset during these tenuous days.

And these days are tenuous.  There are the ordinary breakdowns of everyday life.  The breakdowns we all experience. We lose our TV picture. It's so hot that our potted plants all wither and die.  We keep receiving those calls that our computer is infected or someone can help us with college loans we never took out 50 years ago.  A light on my dashboard lights up for the 4th time, still not fixed after three trips to the dealer. The bombardment of news gets more frightening with each passing hour.  I'm not sleeping well.

What's a resilient soul to do?  Well, work patiently with the disembodied voice in technical support to recover the TV picture and be grateful we got a living breathing soul.  Remove the dead plants and wait till it cools off before replacing.  Stop answering calls from locations we don't recognize.  Take the car to the dealer and tell them the car will be returned if they cannot fix it properly once and for all - they did.  And limit the news, which also cured the sleeping problem.

Then, there are the bigger breakdowns.  The medical assistant that we have come to rely on for information and support suddenly leaves the clinic to move to another city.  A few days later, a dear friend who has been a key member of my personal support system lets me know she is moving, a wise decision for her, another loss for us.  A shot that we have hoped would make transfusions needed less often has had no measurable effect.  

What's a resilient soul to do?  Well, learn to access and interpret John's blood test results on the computer.  (Actually, doing so makes this resilient soul feel just a little proud of herself). Get to know more of the clinic staff. Plan a trip to see our friends after they are settled in, giving us something to look forward to.  Work with our doctor to design changes to John's treatment plan.

This is our new normal.  To take in new information and adjust, as quickly as we can, as patiently and gracefully as we can.  To work with each other and our network of support. To seek solutions rather than rail against the problems.  To focus on what is within our control. A day at a time, some days an hour at a time.

I do like resilient better.  It's more fluid, less easily bent or broken.  Definitely an asset during these tenuous days.  Definitely, a valuable asset for an unknown future.

The Zen of Jigsaw Puzzles

Keeping this blog is finally becoming a pleasure, rather than a project I think I should pursue.  Selecting the quotes and photos, organizing my thoughts, crafting the content, checking to see how well a post is being received, all enjoyable. That is, once I select the topic for the week.  Most often, I churn,  debating ideas, mulling a title, fretting about the opening line, wondering whether this is of value to anyone other than me.  This week, therefore, I decided to put all that on hold and to trust that an idea would simply emerge.  It did.

Last night, I woke at 3 in the morning, a common occurrence of late.  I got up to go to the bathroom and returned to note, again, how grateful I am that John no longer snores.  A result of his stem cell transplant years ago.  I tossed a bit, tried a couple relaxation techniques that sometimes help to lull me back to sleep, and then, unsuccessful, decided to heed the advice of sleep therapists to get up and do something else. 

I padded into the kitchen, intent on getting something to drink before settling down with a mystery and spotted the jigsaw puzzle I have been working on for the past couple days.  A great puzzle with sturdy pieces, an intricate and whimsical picture, bright colors and just the right level of difficulty, challenging but not frustrating.  And close to completion.

For 90 minutes I persisted, patiently and calmly.  I would pick up a piece, examine it carefully, scrutinize the picture. I noted tiny details I hadn't noticed before, variations in texture and subtle differences in shading.  And the more I noticed, the easier it got.  I could pick up a piece and put it down exactly where it belonged.   With a surprising sense of accomplishment.  If not, I would simply place it back in the box and choose another. 

Patient, calm until finally done.  

If anyone had seen me then, standing over the finished product, grinning like the Cheshire Cat, I'm sure she would question why I might take such satisfaction in completing a jigsaw puzzle. And she would have been missed the point.  For I was grinning with the sudden realization that, for 90 minutes, I had been fully present to the task at hand, fully engaged. Not grappling with why I couldn't sleep.  Not chastising myself for not having taken a sleep aid.  Not worrying how I was going to manage today.  Not stewing over this week's post. Above all, not wondering if this is my future, waking, alone, at 3 in the morning to do a jigsaw puzzle. Engaged. Present.

My grin almost dissolved into tears.  For 90 minutes, I hadn't worried about John's health or dwelt on the state of the nation, or chewed on the daily challenges I am confronting with my own aging.  I hadn't turned on TV nor checked Facebook.  I had simply become engaged with something that required attention, complete attention in the moment. Simple, granted not easy, but always available.  Like a good book, or a foreign film with subtitles, or deadheading roses, or really listening to a friend.  Presence, my topic for this week's post had emerged.

Now, I have no illusions that having this experience means I can call it up again on a whim. I have been here before. It's just so much easier to dwell on past memories or future concerns. Easier to be lulled by distractions or caught up in the cacophony of the latest breaking news. Easier to get swept up in emotions (mine or others') or the internal chatter I sometimes confuse with thinking.  Easier, but not very satisfying.

I have no illusions that at 76, I can develop the same ability to dwell in the present as a Buddhist monk who has meditated for decades, or a yoga practitioner, but I am determined to improve.  To at least notice when I am somewhere else and to return to now, the present moment, the only moment in which I have some control.  To restore focus and calm no matter the existing circumstances.  Maybe jigsaw puzzles can become my meditative practice?