Little Things Mean a Lot

Recently, I posted on Facebook -

"A day of simple pleasures...cutting roses in our backyard, a lovely lunch with a fine friend (and a crepe and creme brulee to boot), finding a tiny treasure for my office, an afternoon nap, and a bowl of popcorn while watching the World of Dance with John, who's had a good day too. And off to bed with a good mystery - I'm a happy camper."

I doubt I would have written something like this 20 years ago.   Is it because my world has become smaller and more confined?  Is it because our lives have become consumed by handling more important things?  Is it because the bigger issues in my life are looming as so beyond my control? So far beyond my control that to pay attention to the little things is a matter of survival? 

Or is it simply because I'm older and wiser? Which, of course, is the explanation I prefer!

No matter.  Whatever the reason or reasons, 

• having a good piece of chocolate, well anything chocolate
• seeing a movie with a friend
• watching The Voice or So You Think You Can Dance with John, critiquing the whole way through
• taking the time to enjoy spectacular coral desert sunsets
• journaling on the courtyard chaise in the morning when the only sound that interrupts my concentration is our friendly pair of mourning doves
• laughing at a sacrilegious Facebook post, well laughing in general
• cleaning out a drawer or shelf - I can hear the disbelief now - "you find that pleasurable?" I do, I do.
• watching a baby play, whether a human baby or a puppy or a kitten, a baby
• reading good writing
• hearing John laugh
• holding hands
• learning how to do something new, but especially anything on the computer - John can hear my yell of triumph anytime I figure out something for myself.
• receiving an e-mail, message or phone call from an old friend
• hearing "I love you" and knowing it's true

I can regret that I didn't learn how important or how satisfying this when I was younger, but that's a waste of time.  I'd rather pay attention to these little things.

Illegitimi Non Carborundum

It has been almost eleven months since John was diagnosed with Therapy Related MDS, a relatively new and currently incurable cancer of the blood.  Our initial prognosis with six months extended, thanks to a second opinion, to two years.  These months have flown by, but looking back, I am proud of how we have settled into a "new normal" - a daily way of living with this new challenge.  A new normal marked by grace, partnership, support and a quality I've come to recognize as resiliency.

Resiliency - elasticity, malleability, flexibility, plasticity, buoyancy - I've long recognized this in John.  With a history of non-Hodgkins that required the stem cell transplant that is the cause of his current illness, five hernia operations, three bouts of skin cancer, and macular degeneration, one might expect him to rail against the heavens or to just give up or give in. But he endures.  He keeps getting up.  He takes a day at a time and never relinquishes the fight.  He stays remarkably present and positive. He remains optimistic and reminds me that he's not a statistic.  He reminds me, too, that he beat the odds once, and he can do it again. That he can endure until there is a breakthrough that will extend his life with me.

What I haven't recognized is that his resilience has rubbed off on me.  I've thought of myself as tenacious, strong, and determined; and those are not bad qualities. But I like resilient better.  It's more fluid, less easily bent or broken.  Definitely an asset during these tenuous days.

And these days are tenuous.  There are the ordinary breakdowns of everyday life.  The breakdowns we all experience. We lose our TV picture. It's so hot that our potted plants all wither and die.  We keep receiving those calls that our computer is infected or someone can help us with college loans we never took out 50 years ago.  A light on my dashboard lights up for the 4th time, still not fixed after three trips to the dealer. The bombardment of news gets more frightening with each passing hour.  I'm not sleeping well.

What's a resilient soul to do?  Well, work patiently with the disembodied voice in technical support to recover the TV picture and be grateful we got a living breathing soul.  Remove the dead plants and wait till it cools off before replacing.  Stop answering calls from locations we don't recognize.  Take the car to the dealer and tell them the car will be returned if they cannot fix it properly once and for all - they did.  And limit the news, which also cured the sleeping problem.

Then, there are the bigger breakdowns.  The medical assistant that we have come to rely on for information and support suddenly leaves the clinic to move to another city.  A few days later, a dear friend who has been a key member of my personal support system lets me know she is moving, a wise decision for her, another loss for us.  A shot that we have hoped would make transfusions needed less often has had no measurable effect.  

What's a resilient soul to do?  Well, learn to access and interpret John's blood test results on the computer.  (Actually, doing so makes this resilient soul feel just a little proud of herself). Get to know more of the clinic staff. Plan a trip to see our friends after they are settled in, giving us something to look forward to.  Work with our doctor to design changes to John's treatment plan.

This is our new normal.  To take in new information and adjust, as quickly as we can, as patiently and gracefully as we can.  To work with each other and our network of support. To seek solutions rather than rail against the problems.  To focus on what is within our control. A day at a time, some days an hour at a time.

I do like resilient better.  It's more fluid, less easily bent or broken.  Definitely an asset during these tenuous days.  Definitely, a valuable asset for an unknown future.

The Zen of Jigsaw Puzzles

Keeping this blog is finally becoming a pleasure, rather than a project I think I should pursue.  Selecting the quotes and photos, organizing my thoughts, crafting the content, checking to see how well a post is being received, all enjoyable. That is, once I select the topic for the week.  Most often, I churn,  debating ideas, mulling a title, fretting about the opening line, wondering whether this is of value to anyone other than me.  This week, therefore, I decided to put all that on hold and to trust that an idea would simply emerge.  It did.

Last night, I woke at 3 in the morning, a common occurrence of late.  I got up to go to the bathroom and returned to note, again, how grateful I am that John no longer snores.  A result of his stem cell transplant years ago.  I tossed a bit, tried a couple relaxation techniques that sometimes help to lull me back to sleep, and then, unsuccessful, decided to heed the advice of sleep therapists to get up and do something else. 

I padded into the kitchen, intent on getting something to drink before settling down with a mystery and spotted the jigsaw puzzle I have been working on for the past couple days.  A great puzzle with sturdy pieces, an intricate and whimsical picture, bright colors and just the right level of difficulty, challenging but not frustrating.  And close to completion.

For 90 minutes I persisted, patiently and calmly.  I would pick up a piece, examine it carefully, scrutinize the picture. I noted tiny details I hadn't noticed before, variations in texture and subtle differences in shading.  And the more I noticed, the easier it got.  I could pick up a piece and put it down exactly where it belonged.   With a surprising sense of accomplishment.  If not, I would simply place it back in the box and choose another. 

Patient, calm until finally done.  

If anyone had seen me then, standing over the finished product, grinning like the Cheshire Cat, I'm sure she would question why I might take such satisfaction in completing a jigsaw puzzle. And she would have been missed the point.  For I was grinning with the sudden realization that, for 90 minutes, I had been fully present to the task at hand, fully engaged. Not grappling with why I couldn't sleep.  Not chastising myself for not having taken a sleep aid.  Not worrying how I was going to manage today.  Not stewing over this week's post. Above all, not wondering if this is my future, waking, alone, at 3 in the morning to do a jigsaw puzzle. Engaged. Present.

My grin almost dissolved into tears.  For 90 minutes, I hadn't worried about John's health or dwelt on the state of the nation, or chewed on the daily challenges I am confronting with my own aging.  I hadn't turned on TV nor checked Facebook.  I had simply become engaged with something that required attention, complete attention in the moment. Simple, granted not easy, but always available.  Like a good book, or a foreign film with subtitles, or deadheading roses, or really listening to a friend.  Presence, my topic for this week's post had emerged.

Now, I have no illusions that having this experience means I can call it up again on a whim. I have been here before. It's just so much easier to dwell on past memories or future concerns. Easier to be lulled by distractions or caught up in the cacophony of the latest breaking news. Easier to get swept up in emotions (mine or others') or the internal chatter I sometimes confuse with thinking.  Easier, but not very satisfying.

I have no illusions that at 76, I can develop the same ability to dwell in the present as a Buddhist monk who has meditated for decades, or a yoga practitioner, but I am determined to improve.  To at least notice when I am somewhere else and to return to now, the present moment, the only moment in which I have some control.  To restore focus and calm no matter the existing circumstances.  Maybe jigsaw puzzles can become my meditative practice?

Looking for the Silver Lining

For as long as I can remember, song lyrics have popped into my head at the strangest times - a chance remark, a memory, someone's story, or even for no apparent reason.  I'm used to it.  Have come to just let it be when it happens, and trust that if there is a meaning or reason for its appearance, eventually I will make the connection.

Given both the current political climate and our personal challenges, it hasn't surprised me, therefore, that "Look for the Silver Lining" would be echoing in my head for days now.  "Look for the Silver Lining", for folks who haven't heard of the song, was introduced to the world in 1920, made popular by Judy Garland in 1945 and revisited most recently by Tony Bennett in 2015. And though many people may not know the tune or lyrics (which I include later in this post), the exhortation to "look for the silver lining" has become a common phrase used to support people through trying times. 


So, I've taken time to look for the silver lining in John's illness.  Clearly, we would much prefer not to be fighting cancer yet one more time, not to be facing something currently incurable, hoping that a breakthrough will occur, will be offered the next time we see the doctor.  We would much prefer that John have the energy and stamina he used to have. We would prefer he not need regular blood transfusions and chemo.  But having said that, there are other very real, very special side effects that we might never experience without this challenge, and that's the silver lining.  

Of course, there is the obvious - we are more present in the moment, more conscious of how we speak to each other, how we spend our time, the choices we are making and need to make.  As we have been through other crises, yet seem to forget once the crisis is past. We are also more affectionate, more intimate.  More so than we have ever been.  With little gestures, and at odd little moments.  More appreciative of the life we have had together, the homes, the friends, the memories.  We enjoy the little things, the simplest things, like laughing at Paul Harvey's antics on Family Feud, or deciding which judge a contestant should choose on The Voice, and are conscious, in the moment, of our enjoyment.  Then there are the everyday things too easily taken for granted, like the desert sunset or a glass of B and B after supper, the call or e-mail asking how we are doing, the thoughtfulness of the service people who have taken up the slack for us, a favor we do for each other without being asked.

I'm sure there are others who have learned to live their lives this way without incurring a disease or experiencing a disaster.  I'd like to think we might have evolved this level of consciousness and appreciation over time, but I'm not sure that we might just as well drifted along, most days only semi-conscious.  I also am aware that some people never see the silver lining, never look.  For us, this is the paradox, the contradiction, the both/and.  We are fighting for John's life and we are blessed.

Look for the Silver Lining

                            

Look for the silver lining

Whenever a cloud appears in the blue

Remember somewhere the sun is shining

And so the right thing to do is make it shine for you

A heart full of joy and gladness

Will always banish sadness and strife

So always look for the silver lining

And try to find the sunny side of life

Rules for an Old Woman Thriving

A good friend called recently to share news of the wonderful celebration her family surprised her with for her 90th birthday.  A well deserved celebration for a life well lived.  For a woman who continues to live enthusiastically. One of my role models.

Our conversation got me questioning how I am living today, whether I live with the same zest I so respect in my friend.   And it sent me back to a remarkable book I have read twice now.  Rules for Old Men Waiting, by Peter Pouncey, is the fictional story of an old historian and recent widower, who realizing that he is dying, compiles 10 rules by which to live his final days with as much dignity and intention as he can. 

Pouncey's old man, MacIver, is living alone in a cabin that has fallen into disarray and disrepair, as he himself has, while in the midst of overwhelming grief.  So his rules, are, of necessity, very basic.  "Keep personally clean.  Make the bed every morning, and clean house twice a week.  Dress warmly and light fire when necessary, burning least important things first.  Eat regularly.  Play music and read.  Work every morning.  Nap in the afternoon if needed."  Eventually he refines his Rules for Winter Watch/Rules for the Inside Game and settles on writing a novel as his last piece of "work."  And the result, a moving novel within a moving novel.

I am not ill, not dying.  But I am now 76, in the midst of the Age of Distinction as Michael Gurian describes this stage of life in The Wonder of Aging. ( I much prefer his term to "the old old" that many gerontologists now employ for my age group.)  I want to live the rest of my life with as much dignity and intention as I can for as long as I can.  If I make it to 90, I would like to be a role model for someone else behind me in the stream.  I want to thrive, not merely survive, with "passion and compassion and humor and style and generosity and kindness."

Therefore, my "rules", for now, a work in progress:

• Learn something every day - how to use the computer more effectively, something about aging, something about another country, current events (within mental health boundaries) - something.
• Simplify our home or life style in some way - reduce, reorganize, recycle, restrain.
• Prepare one vegetarian meal each day - alright, it's one step in the right direction.
• Read good literature every day.
• Spend at least 30 minutes outdoors each day.
• Do something special and enjoyable with John every day and make contact with one friend  - thank heaven for e-mail.
• Move - as in walk.
• Find a way to laugh - laugh out loud.
• Spend at least 30 minutes a day on an activity that requires creative expression - writing, drawing, decorating. 
• My work - to engage in an activity that contributes to someone other than myself - right now, that's this blog (hopefully this contributes to some folks), coaching, and some day, my own book.

Now, I realize in reviewing this list that there are some things here that I already do with great regularity.  I realize that there will be always be days I don't do all of these things, can't do all these things.  There will be naps and movies and lunch with friends and catchup telephone calls.  There will be doctors' visits and emergencies.  There will be other options, others opportunities.  In six months or a year, I may add something, delete something, or expand something.  But for now, this feels appropriate, and doable and satisfying, a structure for thriving.

  

A Gentle Reminder

This week, rather than a single quote, I offer a poem.  It was just the reminder I needed while waiting in Houston, struggling to stay positive while I feared the worst.  If it speaks to you, too, you might find the book from which it was reprinted worth a read - The Last Gift of Time by Carolyn Heilbrun.  The poem, "Otherwise",  was written by poet Jane Kenyon

I got out of bed

on two strong legs.

It might have been

otherwise.  I ate

cereal, sweet

milk, ripe, flawless 

peach.  It might

have been otherwise.

I took a dog uphill

to the birch wood.

All morning I did

the work I love.

At noon, I lay down

with my mate.  It might

have been otherwise.

We ate dinner together

at a table with silver 

candlesticks.   It might

have been otherwise.

I slept in a bed

in a room with paintings

on the walls, and

planned another day

just like this day.

But one day, I know,

it will be otherwise.

But not today.

As Good As It Gets

"Let us rise up and be thankful, for if we didn't learn a lot today, at least we learned a little, and if we didn't learn a little, at least we didn't get sick, and if we got sick, at least we didn't die; so let us all be thankful."

~ Buddha

We returned last night from John's six month checkup at MD Anderson in Houston, on the brink of being too tired to go to sleep, on a high from having had better news than we had feared we might receive.  

It was a quick turn-around trip, there and home again in three days. It requires a shuttle drive of a couple hours to Vegas, using a wheelchair to navigate the airport, a three hour flight to Houston, another wheelchair, and then a long taxi ride to the hotel, a stressful trip under any conditions, anxiety laden under present conditions.  Prior to the trip, John had experienced a sudden drop in his white blood cell count and I had read that such a drop could indicate progression in the disease, even indicate the onset of leukemia.  

John was to receive a bone marrow biopsy to determine how well his current chemotherapy plan has been working and whether he would need a more aggressive chemo as suggested by his St. George hematologist, a treatment plan that would require stronger medication that carries possible serious side effects.  Treatment we were hoping to avoid, nevertheless treatment we feared we might be returning to St. George to initiate.  

Following the biopsy, we were scheduled to meet with the hematologist who is consulting with us, Dr. K, a Russian-trained, rather austere, cool and contained woman who had been almost two hours late for our initial consultation in September, known for her tardiness, but thankfully also known for her expertise.  Thursday, she was on time, greeted us warmly, reassured us that John's blood work looked good, that the white blood cell drop was a minor glitch, and that she did not feel the aggressive chemo was necessary.  Just like that, in 20 minutes, the air in the balloons of our anxiety was released.

Relieved, we recognized that John was stronger this trip than our initial visit six months ago. We recognized that we had managed the trip with grace and competency.  We recounted, once again, how grateful we are to have access to this wonderful organization, to another fine doctor, to the collaboration our health care team is exhibiting, to having one another.

We learned a lot in that 20 minute consultation, not the least is that I should not be doing my own research.  I don't know enough to make distinctions about the information.  I don't have the necessary training to understand all the vocabulary.  I am too close to the situation to take in the information neutrally,  too quick to jump to the worst conclusions.  Almost as valuable a learning as what Dr. K shared with us.  Almost.

This is as good as it gets...and that's pretty good.  We are grateful.

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From the Ridiculous to the Sublime

"We are made of oppositions; we live between two poles....You don't reconcile the poles.  You just recognize them."

~ Orson Wells 

I woke Friday, dreading the day.  I still struggled with the reality that "he who would be king", as I have begun to refer to him, would be in the White House.  That so many people could overlook, condone, even applaud his fear mongering,  threats, adolescent petulance, sexist and racist behavior, and blatant lies has been - and remains - a source of dismay and distress. That he and his inner circle exhibit many of the characteristics of Fascism, and that so many Americans either don't appear to recognize this nor seem to care, I find alarming.   That I am being asked to wait and see, to give him a chance...for what?  For how long?

The morning sky did little to uplift my spirits.  Gunmetal gray overhead, a steady persistent rain that mirrored the darkness of my spirits.  John coughing and sneezing, courting yet another cold. I decided not to watch the event, knowing I would end up at best, muttering under my breath so as not to disturb John or openly spewing my frustration and anger at the TV; neither the image of the intelligent, wise woman I'd like to think I can be.

I managed somehow to get through that very long day keeping my frustration and pessimism at bay by staying occupied with household chores and hobbies.   I eventually fell asleep wondering how I would manage the coming months concerned for John, concerned for my country, and concerned for myself if left alone, an old woman, in a world that looks potentially unsafe and inhospitable.

Then, Saturday dawned, still dark, still gloomy, still rainy.  Fortunately, I had a meeting in the morning with a group of women I enjoy and trust, women as concerned as I am, women with whom I can express my concerns without being told to get over it or "give him a chance." Got in a little retail therapy and went home to catch news of the march in Washington. Would the resistance I've been hearing about and reading about on-line materialize into anything that neared the goal of a million women gathering?  Would anyone notice? Could it matter?  What if it went south and people were hurt?

I remained glued to the set as images of women and men and children marching in peaceful protest were gathered from across the country, from across the world.  I delighted in the diversity of cultures, was encouraged by the span of generations, surprised to see some of the cities represented, and entertained by the audacity and cleverness of some of the posters.  I watched as they flooded streets for mile upon mile.  Over 500,000 in D.C. in the midst of winter.  Hundreds of thousands marching in cities in red states.  In Europe and Africa.  Even a group in Antarctica.

But most of all, I could feel the tide of my pessimism and dread recede.  We are not as apathetic and cynical as I have feared.  It will not be that easy to manipulate and remove our civil liberties.  Perhaps, the best to come out of this morass is the awakening of engagement and participation.  Peaceful engagement.  Participation by people in the mainstream who have been lulled into complacency or cynicism.  People on the fringes who have come to believe that no one cares.  People who will be heard.

This morning, as I complete this, the rains have stopped.  The sun is shining.  The sky is filled with clouds.  He is still in the White House.  There is no balance of power in D. C.  But I know there are millions of people watching.  Millions of people speaking up.  Millions of people who do recognize what could too easily happen.  Perhaps some of them did not vote in November, but maybe, just maybe, they will vote it 2018.  This is something I will wait to see.

My deepest gratitude to all who marched.  You have restored my faith and hope.  No small accomplishment.

  

Just for Today

"Do not dwell in the past, do not dream of the future, concentrate the mind on the present moment."

~ Buddha

Just like that, another holiday season is over, officially over as of today.  Another year past. Decorations boxed and stored.  Journals from the past year reviewed.  Just like that.  Like so many holidays of the past.  Over in the blink of an eye.  And at the same time, so unlike other holiday seasons we have known together.  Far less frenetic.  Far more uncertain. 

I have been tempted to make a list of resolutions, create a list of specific goals, design a year of special events and special memories, as I have so many years in the past - anything to gain a semblance of control. Fortunately, I was reminded, by Dear Abby no less, that there is a simpler way, one that I believe will serve John and me much better this coming year.

On New Year's Day, the current Abby, the original's daughter, shared an often-requested list of resolutions that her mother adapted from the original credo of Al-Anon.  I prefer to think of them as guidelines or aspirations that can provide a framework for a simpler, more mindful year.  I offer my edited highlights, those that speak most to me, and a couple more that these have inspired.

"Just for Today:  I will live through This Day Only.  I will not brood about yesterday or obsess about tomorrow."

"Just for Today:  I will not dwell (my emphasis) on thoughts that depress (or worry, or frighten, or anger, or...) me."

"Just for Today:  I will accept what is.  I will face reality.  I will (strive to) correct those things I can correct and accept those I cannot."

"Just for Today:  I will improve my mind.  I will read something that requires effort, thought, and concentration."  Or inspiration.

"Just for Today:  I will do something to improve my health."

And....
Just for Today:  I will do something that is creative and enjoyable.

Just for Today:  I will do something to simplify our home.

Just for Today:  I will do something with John that is fun.

If any of these guidelines speak to you also, I encourage you to read the original list in its totality.   And whether you create resolutions, or goals, or guidelines, or choose to let the year unfold as it will, may it be a healthy, happy one.

Today Is a Good Day...

"Today is a good day for a good day."

I don't know the origin of this quote, but I've been repeating it often of late.  I first heard it used on an HGTV series, Fixer Upper, with Chip and Joanna Gaines.  It not only makes me smile, but reminds me to declare each day as a new possibility, regardless of the state of the preceding day. 

It's not that I'm into denial.  I certainly know bad things happen to good people.  I believe we are in for some rough years ahead with the division in this country and threats around the world.  I understand full well that "aging is no place for sissies."  I face reality every time John needs another transfusion or I hear about another Trump nomination. 

In order to have some good days in spite of all that, however, I am focusing on what I/we can control.  I read my news from a source I trust. I call my representatives to express my opinions and concerns.  I take appropriate surveys.  I try to influence others to do the same. I make sure we stay in regular communication with the cancer clinic.  I learn as much as I can digest about John's condition so that we do our part in his treatment.  

And I repeat, sometimes more than once a day, "today is a good day for a good day."  It reminds me to focus on those things and those thoughts that contribute to a good day.  For me, that includes spending time with John.  It includes contacting a friend, taking time to journal and to read something inspirational.  (Right now, that's The Power of Now by Eckhart Tolle.)   It includes limiting negative news as much as possible, whether on TV or Facebook.  And spending time on a project whose completion brings me satisfaction, like simplifying our home or drawing.

It also includes watching something entertaining on TV.  When I had cancer some years ago, I watched every Fred Astaire or Gene Kelley film I could find.  I know every lyric to the songs of Seven Brides for Seven Brothers and can quote much of the dialog of The Princess Bride and The Wizard of Oz.  And I confess, I'm a sucker for Hallmark movies, especially over the holidays.

I could wish I had come across this quote years ago.  It might have made some difficult periods in my life easier to endure, but I suspect I might not have had the wisdom to appreciate and use it.  For now, therefore, I am adding this quote to tonight's list of gratitudes, followed by "it has been a good day!"