You Are Not Alone

"Life is what happens to you while you're busy making other plans."

~ Allen Saunders

This is a longer and much different post that I intended to write in February.  Life did indeed happen while I was making other plans.  What follows is a compilation of excerpts from my personal journal.  I share them, not to offer any profound insights or solutions, but in the hope that you can identify with some of my thoughts and emotions and find that at least a little comforting.

Mar. 3 - This virus - why am I only attending to it now?  Apparently, it's been ravaging other countries for weeks now.  This is the downside of not watching the news.  How many other Americans are unaware of the problems that may be coming our way?

Mar. 4 - At a recent rally, the President actually said we could wake up one day and it would be gone.  It's one thing for me to be oblivious, but the President?

Mar. 6 - Italy has shut down all of its schools.  And still, we do not seem to be taking this seriously.  This denial and even arrogance is astonishing and bodes serious concerns for us, I fear.

Mar. 9 - Why am I feeling such a sense of trepidation?

Mar. 11 - Italy is in complete lockdown.  I just watched videos of Italians in Siena, Naples and somewhere in Sicily standing on their balconies singing together to try to uplift their spirits.  One of my favorite memories is of a visit with friends to Siena on a bright afternoon, eating gelato among a throng of tourists.  Today both husbands are gone, taken by cancer within the same week and Siena looks like a ghost town. I weep at the breadth of loss.

Mar. 12 - We've canceled our April and May luncheons.  If our government won't give us a clear direction, we have to make decisions to protect our selves and our membership.  I am so proud of this Board.  And speaking of decisions, I am putting boundaries around watching the news.  I've been glued to the TV, seeking information and recommendations from the scientific and medical communities.  But too much information and I leapfrog across depression into despair.  I need to pay as much attention to my mental and emotional health as I do my physical health.

Mar. 13 - Emerging voices are sounding an alarm that we are not prepared for a crisis of this magnitude.  Not enough ICU beds, not enough supplies or personnel should this hit us the way it has hit Italy or Spain.  Not enough people taking this seriously.  The attack on science and our press in recent months has diminished their authority.  I fear this pandemic is going to accentuate the cost of our political polarity and expose the underbelly of our society.  We are certainly going to see an interesting cast of heroes and villains.

Mar. 14 - A FOX commentator asserting this is a hoax, accusing opponents of using the virus to embarrass the President.  This is not helpful.  We need facts and reliable information.  How do I remain responsible and sane amidst comments like this and the name-calling and diatribe on TV and social media venues?!  Boundaries, boundaries!

Mar. 15 - I just created a binder of lists - books to read, friends to contact, projects to complete, topics/ideas to explore, hobbies to take up again, etc.  At least, it helped to restore a minimal sense of control.

Mar. 17 - I woke this morning and set about my usual routine - breakfast, taking a few moments to notice and appreciate the shrub beyond the courtyard wall in its coat of purple spring buds, then curling up in my favorite chair with my journal in hand.  Then, I made the mistake of checking the stats - 4565 cases in the U.S. and 87 dead.  The juxtaposition leaves me at best confused and at worst, anxious.  And if I am anxious, retired here in the safety of southwestern UT, what about all those millions of people out of work, many in congested cities?  How are they coping?

Mar. 18 - Watching views of people ignoring the call for social distancing - or is it that they just don't care?

Mar. 19 - Sixteen months today since John died.  I am taken by a wave of relief that he died when and how he died - his valiant heart simply giving up the struggle, in our home, his hand in mine, my sister here to support me.  How would I have handled watching him struggle for air behind a glass barrier as I have seen images of people in just that circumstance?  What if our doctors have to decide who they will try to save as Italian doctors are facing?

Mar. 21 - Structure, focus, mindfulness, gratitude - I cling to these words.  Far too easy to descend into anxiety or outrage at the ineptitude of our federal government.  Thank heaven for some of the governors who are showing up in this leadership vacuum.

Mar. 23 - Thankfully, I have much to be grateful for - friends checking in, the network of support I'm blessed with, learning to use new technology, spring weather, living in a relatively small and safe community, and always the companionship of my sweet rescue dog, Rufus.

Mar. 26 - The cloudbursts of personal grief seem to have subsided, blown away by the larger sense of loss, existential grief as it were.  So much loss - jobs, security, trust in our institutions, in one another, in the belief that we will be strong enough, resilient enough, smart enough and united enough to emerge from this whole and healthy.  My habit of recording five things to be grateful every night is a sanity saver.

Mar. 27 - I have to remember not to try to make sense out of nonsense - it's impossible and exhausting.

Mar. 28 - Thank heavens for images of individuals helping their older neighbors or the creative uses of technology to stay connected, or the generosity of some of our athletes and celebrities and the amazing courage and compassion of our health care workers.  These images comprise a life preserver in this sea of uncertainty. They restore a sense of hope for me.

That's enough for now.  I hope this does as I had hoped for some of you out there - you are not alone.

Looking Back in Order to Look Forward

"Sometimes you have to look back to be able to look forward."
~ unknown

It's that time of the year when I look back to see where I've been, what I've accomplished, and where I want to head in the coming year.  I've done this every year for the past 35 years except last year.  John had died in November and the best I could do was hope that I'd endure the grief and mourning that overwhelmed me - and I wasn't so sure about that.

So, this year I dared to pull out my private journals from 2018 and 2019 (six in all) and began to read, hesitantly, a few pages at a time.  Knowing I would dredge up painful memories, bittersweet memories, but also, hopefully, memories that could sustain me and buoy up my tentative optimism for the coming year.

 I had so many questions:

• Had I been the compassionate companion I wanted to be?  Did I do enough?
• What help and support meant the most to John, to me, to us?
• What help could I or should I have asked for sooner?
• Why was this past autumn so challenging? Why am I optimistic, even if cautiously, now?
• What have I learned from these past two years?  How have they shaped me?
• What could I accomplish or contribute as a result?  What calls to me?

I've started at both ends of those 26 months, the early months after the diagnosis and the last months immediately preceding and succeeding his death.  And the months of this previous autumn.  It's glaringly obvious that this will take me more than a couple weeks to accomplish, as I write a minimum of two college-lined 8 1/2 x 11 pages every day and many of them are challenging to read.  I've taken on a  project that could well take a few months.

But this much I have learned already:

• This past autumn was so challenging, in part, because the summer flew by with relative ease, and I became complacent.  I was stunned by the impact of darker mornings and earlier dusks and much more anxious than I had anticipated for the impending anniversary of John's death as well as the holidays.  My private journal pages contain more grief and anxiety than is my intention to share here.  Not that I didn't share that with close friends and a counselor, but my intention here is to be helpful and as positive as possible.
• Speaking of intention, I was reminded that we promised each other from the very first week that, whatever came our way, we would handle it together with as much grace and dignity as we could muster.  And my reading to date reaffirms that we did, some days better than others, of course, but we clung to that promise especially in the final weeks of his life.
• In the weeks following John's death, I was overcome with regrets.  Normal, I'm told, but so very painful.  It was, therefore, a gift, and an affirmation of the value of all that journal writing, to come across the passage where I captured one of the last things he said to me - "How was I ever so lucky to have found you?"  He thought I did enough, more than enough.  And today, that's good enough for me.  
• Regarding support,  I learned so much about support - especially about needing it, asking for it and accepting it willingly and graciously when offered.  So much that it will be the topic of my next post(s), maybe eventually, a book.  For me, looking back is helping me to rebuild a bruised sense of self-confidence, to reassure me that I will be ok, maybe stronger than ok, and to point optimistically to a future that holds purpose and satisfaction.  
• I'm back.

Just Not Yet

"Don't cry because it's over.  Smile because it happened."
~ Dr. Seuss

I love Dr. Seuss and I so want to believe this.   I can recognize that I am making progress, for sure.  In those first few weeks after John died, I despaired of remembering him other than from those last six months when he declined so significantly, losing weight, losing his ability to drive, losing his eyesight, eventually needing my help for even the most rudimentary tasks.  I panicked when I couldn't remember the silly little jingle he created and sang only in the shower.  I couldn't sleep in our bed, couldn't ward off the regrets.  

I turned to a multitude of grief books, hoping to find that someone else, anyone else, who felt the way I did.  Thankfully, I found the reassurance I was looking forward.  Not crazy, not unusual to feel so frantic.  

Then one morning, out of nowhere, the jingle emerged as I was waking up.  Gradually, sweet memories from those last six months returned.  How pleased he was that our little rescue dog, Rufus, and I had "found each other."  How he would sing to me, "Have I told you lately that I love you?" several times a day.  How, when I asked if he knew how much I loved him, his response was "and do you know how much that mattered?"  How he always expressed his gratitude to me, to his doctor, to the home health care and hospice nurses who cared for him.  Memories that, though they first brought tears, could also evoke a smile.  Not either/or but both.

In recent months, other memories have returned, sometimes initiated deliberately by someone sharing a common experience.  Or when I have had the courage to sit with photo albums or my basket of all the cards he sent me over the years.  When I have had the courage to go through a travel journal - our trips to Tuscany or the one to Sicily when we came upon a relative of mine sitting on a doorstep in her housecoat and flannel slippers, a scene from a Fellini movie.  Or the photos from the helicopter ride down the face of the Jurassic Falls.  How thrilled he was to sit beside the pilot.  

There are the memories that pop up unexpectedly - when it's dusk and I can hear him call to me to "come see this.  You won't believe the sky."  Or when I wake in the morning and recall how he would ask how I slept.  Hearing that Tiger Woods won the Masters and knowing he would have said, "I told you so."  Walking into the local Starbucks and ordering an iced tea the way he would have.

The intimate memories - the night we met in a "bar in Kansas City."  Well, an elegant lounge actually, but he loved telling everyone it was a bar.  Our wedding, the way he hovered when I had breast cancer, the beautiful messages he wrote on every card until he could no longer even sign his name.  

There isn't a day now when yet another memory emerges.  Bidden, unbidden.  Most of the time I can smile, well, at least smile first.  Am I at the point when I don't cry?  Not yet.  Will there come a day when I can simply smile because it happened?  Maybe, hopefully, but just not yet.

I Am No Stranger to Grief

"Grief is not a train track toward acceptance.  Instead, it is more of a 'getting lost in the woods.'"

~ Alan D. Wolfelt, PhD

I am no stranger to grief.   I have walked the path of grief alone and as a companion of family members and friends many times in my 78 years.  I have grieved openly over the assassinations of my youth and the shootings too common these past few years.  I am no stranger to grief.

So I thought I was prepared for John's death.  I was naive enough to think I was "ready".  Moreover, I was more concerned that I would be relieved rather than bereaved.  I wasn't - either ready or relieved.  I was shocked, that the pain and fear and regret were so crippling; also shocked that I was shocked.

It has been 12 weeks now, 12 weeks today, and the initial shock waves after subsided.  I have put my feet forward into the woods, deliberately, albeit with no small measure of anxiety and trepidation.  It is helping to think of this as a journey on an unchartered path through a dense forest.  This metaphor helps me when I'm going along, seemingly upright and grief descends like an unexpected branch that smacks me in the chest or an unseen root sending me tumbling face forward to the ground.  It helps when is a ray of sunshine breaks through the canopy of grief and for a moment I feel guilty that I feel OK.

I'm pretty sure not everyone thinks in metaphors nor finds solace in them, but this one works for me.  Grief as a path, an unchartered path through a dark forest.  A path that one has to create slowly, carefully, a step at a time.  Sometimes moving in the wrong direction, sometimes stumbling, sometimes frightened and disillusioned, but eventually finding the clearing.

I remind myself that I am no stranger to grief.  I may not have been lost in so vast, so dark a forest before, but I have made it through a miscarriage, a divorce, the loss and betrayal of friends, my own cancer - I will survive.  Someday, I may even thrive again.

Because He Listens

"The first duty of love is to listen."
~ Paul Tillich

I write this as we approach our 35th, and I fear our last, wedding anniversary.  We met 38 years ago, Aug. 18, 1980, to be exact.  In a bar in Kansas City, as the song goes.  Just 15 minutes before I had determined to leave.  I was there with a colleague, sharing with her the highlight of a long road trip I had taken alone, so proud of what I had done.

John walked in with a friend to celebrate a successful business transaction and sat at a nearby table.  His first trip to Kansas City, he asked a question of his friend that the man could not answer.  But I could, and without much thought, did.

We continued to talk - about the city, and then work, and backgrounds and interests - and he listened, at a level I had rarely experienced.

When we parted, we exchanged telephone numbers in case I ever got to Cleveland, his home base.  In case he ever visited Kansas City again.  Which I seriously doubted.  

The next day, I told my mother that I had met someone who, though I was sure I would never see again, gave me hope that there might be someone with whom I could build a lasting, supportive relationship.  In fact, I told her, were we to live in the same city I was sure we would end up married.

He called the following Sunday morning just to talk.  And he listened.  As he did every Sunday morning for weeks.  And eventually every Wednesday evening, and eventually every night.  As he did throughout the challenges of determining how to create a lasting relationship across miles and different careers, across different backgrounds and commitments, across significant hesitations and considerations.  Somehow, even when he became most fearful or I became most frustrated and angry, he strove to listen.

And I came to realize that for all the reasons I had come to love him, at the top of the list was that he always listened, no matter how difficult the conversation.  I moved to Cleveland, and we married in l983.

That foundation of talking and listening through the tough conversations has served us well.  Sustained us through several moves, career changes, presidential campaigns, caregiving for my elderly parents, and battles with cancer.  It continues to be a basic survival skill as we deal with this, the greatest challenge we have ever faced, the most difficult conversations we have ever had to have.  Still, he listens.  I have never loved him more.

One Step at a Time

"Mountains cannot be surmounted except by winding paths."

~ Johann Wolfgang Von Goethe

As much as I love a good quote and have notebooks and computer files filled with them, I have committed very few to memory.   This quote by Goethe is the most recent.

In reflecting on how few I have memorized, I realize there are three reasons a quote makes the cut - it conveys something I already believe but with fewer and more impactful words, it evokes a feeling or belief I wasn't aware I have, or most importantly, it challenges and impacts the way I am thinking.  This quote falls into the third category.

Prior to coming upon the quote, I was most influenced in the way I think about life and its challenges by a transaction with a friend in December l999.  We had just moved to Vegas with my mother, who was grieving the sudden death of my dad that October.  Determined to give her a decent Christmas and reassure her that this was now her home, exhausted and grieving myself, I nonetheless pulled out all the stops and decorated the house (with many boxes still unpacked in the garage) and invited friends for a holiday party.  

The evening hadn't progressed very long when my friend pulled me aside to paraphrase the Breda O'Connor quote and remind me that my future as my mother's caregiver was a marathon and not a sprint - a simple, immediate, and effective image for me.  So effective that I clung to that image for the next 18 years, through caregiving for mom, my battle with breast cancer and John's stem cell treatment for non-Hodgkins Lymphoma.  And it served me well.

But today, soon to be 77, once again a caregiver, the metaphor or image of running a race, even if a marathon and not a sprint, is no longer helpful.  Not that I would have recognized this were it not for stumbling on this quote.  Somehow the image of walking a winding path feels more congruent with my experiences these past 18 months since John was diagnosed with a currently incurable form of MDS.  Plugging uphill, with unpredictable switchbacks, dips in the road, obstacles to be cleared or avoided, moments when I can barely breathe, the path ahead poorly marked - yes, a winding path up a mountainside.  The more I have reflected on this quote, the more validating it has become.  The more helpful it looms for the months ahead.

I don't know the shape of the mountain ahead of us or how far up the path we will make it together, but I do know, without a doubt, that it will be winding and circuitous, in spots even treacherous.  I do know that we can and will take it one step at a time.

*If you found this helpful or know someone who might, please share and like my page.

Reflections on Christmas Past

"Christmas is a season not only of rejoicing but of reflection."

~  Winston Churchill

I woke the other day with the sudden realization that this is my 76th Christmas and a flood of childhood Christmas memories washed over me.  For no apparent reason.  No dreams that I could recall.  No family traditions binding me to the past.

Then again, I have been decorating with a vengeance and friends have called to say they will be visiting.  And I have indulged in more than a few Hallmark holiday movies.  You know the ones, filled with romance and fantasy, ideal families and happy endings.  Simple plots and enough good cheer to last all year.

Our family was not filled with good cheer.  Money was tight. Relations could be strained.  But, somehow, we were at our best at Christmas.  

I loved watching my mother bake cookies for weeks starting right after Thanksgiving.  Enough chocolate chips and pecan snowballs, Spritz and sugar cookies, pinwheels and ladyfingers to fill the turkey roasting pan and several large bowls.  All made with real butter and leaving an aroma that filled the house for weeks.  Enough to give packages to all the family who came to visit.  And they came - all six brothers of my dad, and the two brothers and a sister of my mom, and their children.  They flowed in and out for days.

I loved decorating the real tree, purchased only a week or so before the holidays and laden with family heirlooms and silver tinsel that had to be layered a string at a time - I remember feeling so grown up when I was finally allowed to do so.  And the cards, checking the mail every day to see if we received a card from someone Mom had sent one to, her cards signed in red ink for the season.  She would read them, looking for a message, and then tape them to the archway to the living room.  And count them, every year.

The other sure sign of the season - the music.  Not only did Mom enjoy the traditional Christmas carols, (well, I think Rudolph was tolerated), but once we attended Catholic school, I sang in the church choir.  And Midnight Mass was the second time Dad could be dragged to church, Easter being the other.  Such a treat to get "dressed up" and sing before my parents.

And of course, the food.  Both Mom and Nonna were great cooks.  We celebrated Christmas Eve with Nonna who made pizza, from scratch naturally, and fried the leftover dough and rolled it in sugar, a treat for the grandkids.  Then, returned for Christmas Day to a feast that took days to prepare and almost as long to clean up after.

Gifts were simple - coloring books and crayons, puzzles, roller skates, a game.  And always pajamas and for me, and later my baby sister, a dress that Mom sewed.  Gifts that appeared while we were at Nonna's.  Gifts that I discovered Mom and Dad had bought when I finally noticed that Santa's name was always signed in red ink.  Gifts that were given and received with love and appreciation.

We were at our best at Christmas.  I think I'll bake cookies this year.