On This Thanksgiving

 

"Optimism is really rooted in gratitude."

~ Michael J. Fox 

As this third Thanksgiving since John died approaches, I find myself with a sense of optimism I have not felt for many months.  Surprisingly so, considering this past year filled with a global pandemic, isolation, political unrest, and the rampant fear, anxiety, and anger that resulted.  But reading this quote by the actor, Michael J. Fox, makes so much sense to me because in spite of daily upsets and conspiracy theories, in spite of constant "the sky is falling" and threats and recriminations, I have managed somehow to record 3-5 statements of gratitude every night.  On only one occasion were the statements a repeat of "I made it through the day."  And though not always optimistic, I know the practice kept me from despair.

Were John alive, we would have engaged with a Thanksgiving ritual of taking turns expressing what we were grateful for over the past year.  This year, I will initiate the ritual with my sister and brother-in-law with whom I am staying while I await the availability of my own apartment in the rolling hills of central NY.  For, this, in itself, is certainly one of the most important items on my year's list of gratitudes.  

I offer my list in the hope that it will trigger yours, initiate the possibility that you will adopt this ritual, and conclude with a feeling of optimism for the coming year.

This year I am grateful for:

• having made it without contracting the virus
• having friends who were as careful as I was, thus never endangering me
• the technology that made it, and will make it, possible for us to stay in contact, possibly the silver lining in this mess
• the e-mails and jokes that brought moments of laughter and respite from the steady stream of vitriol on the airwaves and social media
• my circle of "sisters" - you know who you are - who message every morning and every evening to stay in touch, just in case
• dessert sunsets in Utah
• autumn colors in NY
• the constant companionship of my sweet rescue dog, Rufus
• having sold my home in UT in 2 days
• the incredible efforts of support from friends who were there when I most needed them and helped to make the move a success in a very short time
• the kind notes and e-mails that acknowledged the contributions I tried to make to my little Utah community and the many friendships I forged in the process;  the notes and e-mails from old friends to encourage and cheer me on
• a safe automobile journey across the country, thanks to the chauffeuring of a young friend and the absence of snow
• her continued help in tying up loose ends; I never could have pulled this off without her
• the care and generosity of my sister and brother-in-law, especially his wonderful cooking and both of their patience and tutelage as I learn my way around newer technology and newer environs
• getting to know them at a different level, growing to love and appreciate them even more
• chocolate covered blueberries and glasses of chilled white wine
• finding an apartment that meets all of my criteria 
• the unexpected kindnesses of strangers, strangers who are willing to wear masks
• the prospect of seeing old friends I haven't seen in years and family I have yet to meet
• being with my sister on the second anniversary of John's death, she who was with us that night
• warm memories that bring smiles now instead of tears
• being in the position to explore the area, make new friends, strengthen family ties, indulge in hobbies - how fortunate am I?
• and last, but most certainly not least, the e-mail from an old friend on the day I was questioning my decision to move, wondering what lies ahead of me, filled with doubts and misgivings.  Her kind assurance that John would surely say, "that's my Angie", was the perfect boost. I, too, know he would. 

With so much to be grateful for, how could I not be optimistic?  

.

 

 

The Sounds of Silence

"To hear, one must be silent."

~ Ursula K. Le Guin

It has taken me a few months to venture into the waters of silence. I'd like to say I purposely chose to wade in, but it has happened gradually and accidentally at first. Like so many folks these days, technology has made it all too easy for me to be distracted - the computer, the TV, the phone, notepads - so easy and enticing.

With John's death, 21 months ago today to be exact, I initially found silence to be foreboding. In the middle of the night, when I would wake to overwhelming grief and anxiety, it became a habit to get up, turn on the TV or music and distract myself until I could fall back to sleep. During the day, I would read (usually with a background of music), or call a friend, or run off to do errands or attend a meeting—anything to keep the pain at bay, at least for a little while. At least until I could parcel it out in doses and drum up tried and true approaches that had guided me through other challenges of my life - approaches, in retrospect, that only kept the demons at bay. 

And then, the virus hit, and though I thought and hoped, as many of us did, that everything would be back to normal by autumn, the rising statistics this summer soon proved me wrong. June and July presented a confrontation with everything I believed about myself, the future, and my ability to quiet the cacophony in my head and plan for the future. How does one plan for such an unknown future?

Then, one recent morning, with no particular reason that I can recall, I started to journal in total silence. No music, no news, silence, and the quality of my writing and the level of honesty was so noticeably different that I knew immediately that I could only still the inner noise and confusion by being willing to be quiet enough to hear and deal with it.

At first, I was stunned by a level of grief that I now realize I had simply covered up. Cloudbursts of tears became thunderstorms at the mere glance at John's photo or the discovery of a loving card. I could feel waves of irritation or anxiety physically when I prepared to run even the simplest errand. The more I wrote in silence, the more I got in touch with outrage over how this virus has been mishandled and my dismay over the distrust, nastiness, and division I see in my country. The more I wrote, I more I got in touch with a fear of incompetence and a degree of loneliness I had not felt in decades.

Gradually, I lengthened the periods of silence. I wrote more and more. Began to take my lunch out to the patio and just listen for birds or children playing behind the backyard wall. Slowed down and enjoyed my food. Noticed the sound of the breeze through the trees in the early hours of the morning or Rufus' gentle breathing as he curled up beside me in bed. Caught an idea as it surfaced unexpectedly. 

But most importantly, I recognized, quite abruptly in fact, that my underlying fear was not that I couldn't cope with the present, but instead that I had no sense of purpose for the future, and that I knew errands, and house maintenance and even volunteering were no longer enough. That, without John, I have come to yearn for family and physical proximity to people with whom I have a longer and more intimate shared history. At that very moment, I decided that I will move to New York State when my younger sister retires. At that very moment, I accepted that just as a future decision has emerged in my willingness to be still, so will a larger purpose.

One recent night I realized that I hadn't watched TV for a week other than to turn on some music while I cleaned the house. And that I am going to bed earlier and sleeping better. That when I do wake, I don't get upset. I merely read awhile until I go back to sleep. That projects are emerging more naturally, like simplifying the house, not just organizing it. Or finding it easier to let go of "stuff" because I'm already thinking of moving. Or knowing what I want to blog about without false starts and second-guessing!

Am I totally comfortable with silence? Not by a long shot. Do I plan to take up meditation? Not now, not yet. But I am growing comfortable with long stretches of silence, more confident that I will hear what I need to hear. And, surprisingly, grateful for this period of solitude.

Just When I Think.....

"Future shock is the shattering stress and disorientation that we induce in individuals by subjecting them to too much change in too short a time. "
and
"The illiterate of the future will not be the person who cannot read. It will be the person who does not know how to learn." 
~Alvin Toffler  

Typically, I would choose only one quote to launch a post, but these are not typical times. They are, in fact, the times that Alvin Toffler, the futurist, first described in 1970 in Future Shock, a future time of unprecedented change at an unprecedented acceleration. 

I was privileged to hear Toffler speak at a convention where he described the future of change not only in the United States but globally.   What I remember most vividly is the first question that was asked in the Q and A period following his presentation, and his response.  Question:  "When will this slow down?"  Response:  A smile and then, "I'm smiling because yours is the first question I always get and my reply is the one I always give, not in your lifetime."

I went back to Toffler after reading my personal journal entries from April and May and recognizing how much had changed in the outer world reported in the news and my inner world recorded in my journals in only these past two months.  After I could see how much I felt like a ping pong ball bouncing from player to player to player to player.  After seeing how I could vacillate between the throes of frustration, outrage, and self-doubt one day and the reassurance that my coping skills were more than adequate and then back again, sometimes within one day. Yup, stress and disorientation.

So, I have chosen to reflect on what I am learning, what I may have forgotten that could be helpful, and maybe most important, on evidence that I am learning from this.

• Just when I think I've recovered a modicum sense of equilibrium, something happens to throw me back into free fall.  I come across conflicting information or distressing national news, I forget or lose or break something, I learn of a friend with a serious health challenge.  Sometimes all within one day.  Change does seem to be happening at warp speed.
• Data and information are not enough.  I own the responsibility to seek out the appropriate experts and check the veracity of the information.  (Taking the medical advice of a politician is akin to asking my auto mechanic to clean my teeth!)  
• I need occasional breaks from outside information for my mental and emotional health.  I woke up yesterday to the news and images of protests springing up across the US, to some of the violence that was occurring, to the inflammatory responses being reported from people who could and should offer otherwise.  I could feel the sorrow and outrage bubbling up, so I chose to turn off the TV and clean a closet.
• Taking care of my mental and emotional health is as important as taking care of my physical health.
• An occasional escape from the harsh realities we can now see 24/7 in technicolor is respite rather than denial, healthy respite.
• I'm recognizing sooner the things I find stressful.  Too much negative news at one time.  Generalizations, attack, hatred, denial, although understandable, don't help in the long run.  Maybe at the moment, but not in the long run. Including, and especially, my own even if silently expressed.  Sharing worries and anger, frustrations, vitriol, and fears, although helpful for awhile, indulged too long only seem to exacerbate them.
• I'm also learning to recognize the signs of disorientation soon enough to reorganize - waking in the middle of the night and being unable to return to sleep, becoming clumsy or unusually forgetful, talking faster, feeling irritable or blue for no apparent reason, leaving simple tasks unfinished.  These are my signs.
• Three things help me adjust more gracefully to the next change - staying as conscious and present to the immediate moment, paying attention to what is positive and works for me (rather than worrying about what's "right" or what others think I should do) and looking for creative solutions to the problems I can control.  I'm far from mastering any of this.  I wish I were more agile, but I guess I'm a work in progress.
• It is more helpful to me to challenge my own thinking than the thinking of everyone else.  More satisfying, more possible, and more effective.
• I am more of an introvert than I ever would have suspected.  But I also need to connect with someone every day, and seeing that person, if only on Zoom or Skype, is a pleasure.  I love my little rescue dog, Rufus.  I find myself talking to him a lot, but beyond wagging his tail and rolling over on his belly to be scratched, he can't answer me.  He can't ask the question that helps me slow down my inner dialogue or evoke some laughter when I most need it.
• There is something exhilarating about solving my own problems.  You'd think I had conquered Mt. Kilamanjaro whenever I solve a computer issue on my own.
• Nevertheless, I am still learning when to ask for help.
• To quote Sheldon Kopp, "The world is not necessarily just.  Being good often does not pay off and there is no compensation for misfortune.  You have a responsibility to do your best nonetheless."
• Either/or thinking at best limits possibilities, at worst, it's creating havoc in our public life.  I am striving to remain vigilant when I fall into that trap. 
• It helps to focus on the possibilities inherent in all this change, as much as the breakdowns and problems that present themselves.  I appreciate my home more.  I relish my time with friends.  Having learned that I can weather the depths of my grief over John's passing, I know I can weather the grief of my current disappointment and disillusion in my country.  Eventually, if not now.  I have a much neater home and I'm even learning to enjoy cooking and playing around with technology.    
• The little things.  Thank heaven for a bumper crop of roses, a stranger who offers help, a breeze when it's hot and air conditioning (!), the desert sky at dusk, a friend who calls just to check in, a good piece of chocolate or a glass of homemade lemonade, a happy memory, the quote that helps me make sense of what I'm seeing or feeling or thinking, and always, my sweet little Rufus.  The little things that are always available, just waiting to be noticed and appreciated.  The little things that I am noticing and appreciating more than ever.

Well, I can at least take some comfort in knowing I can't be called illiterate!

Thank Goodness for the Little Things

"In grief, the little things are the big things."

~Alan D. Wolfelt, Ph.D

Grief One Day at a Time

I have been expressing my thankfulness for little things in gratitude journals for over 40 years.  This practice has been a support through divorce, illness, and times of conflict and stress, but never as much as these past months since John's death.  So, upon coming across this quote recently, I decided to revisit the gratitude journal I've just completed to see what little things buoyed me up this past summer.  Could it be that noticing and appreciating these things contributed to the summer being easier than I had dreaded?  

• a bumper crop of roses - John would have been so pleased
• a hummingbird hovering within inches of my face
• chilled red grapes
• a decent night's sleep
• and an afternoon nap on the patio chaise
• figuring out how to program the TV on my own
• frozen yogurt on a hot day
• a good book - great writing, thought-provoking, elegant - the perfect book for the moment
• an unexpected call from an old friend
• and an invitation for lunch from a new one
• two dozen, yes two, yellow tulips (my favorite flower) from a friend, "just because"
• the desert sky at dusk
• a slice of cheesecake that I treated myself to
• chicken noodle soup when I'm under the weather
• how much better everything sounds with my new hearing aids
• finding an old love letter
• a sudden, unexpected happy memory
• a card, a joke, a silly gift -  moments that evoked giggles, even outright belly laughs
• a customer service agent who actually provides good service
• helpful strangers who reach objects on top shelves without my asking (I'm only 4'11 and need all the help I can get)
• anyone who asks how I'm doing and is willing to hear the truth
• friends who have walked this path before me and can reassure me that what I'm experiencing is normal
• a stranger telling me how much she or he enjoyed John and misses him
• old musicals - especially anything with Gene Kelly
• and gripping British mysteries
• a good news story that sets the tone for a positive day
• stumbling on an inspirational quote
• finding something I've misplaced 
• and always, always, my sweet Rufus, my little companion, who greets me with pirouettes and soft growls, tailing wagging, a guarantee I never walk into an empty house

Reflecting a bit on this list, I can see that this simple practice of recording 3-5 little things I'm grateful for every night is, indeed, one of the little things that is helping me endure this grief.  Without this as an established practice, I suspect I could find it almost impossible to notice the little things. For this enduring practice of finding gratitude for the little things, I am most grateful.

How Could I Forget?

"Life is what happens while you're busy making other plans."

~ John Lennon

Where did the summer go?  I had so many plans - plans to write, maybe travel a bit, complete reorganizing the house, lose 10 pounds (again), and of course, deal with this on-going grief as it was sure to arise.

Then, life happened.  It interrupted my plans in late May when I woke in the middle of the night with an attack of vertigo, the room spinning, my stomach churning, and the realization that should I fall, no one would know.  A realization that brought on a wave of grief and anxiety I hadn't known since the days immediately following John's death in November.

It was this event that set into motion a series of challenges and decisions that would occupy several following weeks.  First, the diagnosis of Positional Vertigo, exercises to correct it, weeks of unsteadiness and incipient nausea, and always the fear of falling.  Then, hearing testing and hearing aids.  Followed by a balance assessment and the warning that my balance was so poor that I was in danger of falling, with or without vertigo.

For a while, it seemed that each new attempt to resolve a problem only led to the identification of another problem.  It took all of my emotional energy to avoid holding a major pity party for myself.  Needless to say, I didn't travel, didn't write beyond my personal journal pages, and comfort snacking didn't do much for a diet!  So much for plans.

Ultimately, I did resolve my health challenges.  I enrolled in a balance course and made significant inroads in organizing the house.  I got an alert system which has alleviated much of my concern about being alone.  And while I haven't lost weight, I haven't gained any - a small victory considering all the stress!

So, as dawn arrives later every day and dusk settles sooner, as autumn is in the air and I anticipate the first anniversary of John's death, my second Thanksgiving and Christmas without him, I could easily descend into anxiety and trepidation.  However, the greatest accomplishment of this summer has been to remind me, not that life happens while I'm making other plans, but that I have the resiliency, the skills and support to deal with it.  I almost forgot.  

Because He Listens

"The first duty of love is to listen."
~ Paul Tillich

I write this as we approach our 35th, and I fear our last, wedding anniversary.  We met 38 years ago, Aug. 18, 1980, to be exact.  In a bar in Kansas City, as the song goes.  Just 15 minutes before I had determined to leave.  I was there with a colleague, sharing with her the highlight of a long road trip I had taken alone, so proud of what I had done.

John walked in with a friend to celebrate a successful business transaction and sat at a nearby table.  His first trip to Kansas City, he asked a question of his friend that the man could not answer.  But I could, and without much thought, did.

We continued to talk - about the city, and then work, and backgrounds and interests - and he listened, at a level I had rarely experienced.

When we parted, we exchanged telephone numbers in case I ever got to Cleveland, his home base.  In case he ever visited Kansas City again.  Which I seriously doubted.  

The next day, I told my mother that I had met someone who, though I was sure I would never see again, gave me hope that there might be someone with whom I could build a lasting, supportive relationship.  In fact, I told her, were we to live in the same city I was sure we would end up married.

He called the following Sunday morning just to talk.  And he listened.  As he did every Sunday morning for weeks.  And eventually every Wednesday evening, and eventually every night.  As he did throughout the challenges of determining how to create a lasting relationship across miles and different careers, across different backgrounds and commitments, across significant hesitations and considerations.  Somehow, even when he became most fearful or I became most frustrated and angry, he strove to listen.

And I came to realize that for all the reasons I had come to love him, at the top of the list was that he always listened, no matter how difficult the conversation.  I moved to Cleveland, and we married in l983.

That foundation of talking and listening through the tough conversations has served us well.  Sustained us through several moves, career changes, presidential campaigns, caregiving for my elderly parents, and battles with cancer.  It continues to be a basic survival skill as we deal with this, the greatest challenge we have ever faced, the most difficult conversations we have ever had to have.  Still, he listens.  I have never loved him more.

It Was a Very Good Day

"How beautiful a day can be when kindness touches it."

~ George Elliston

I made a promise to myself at Thanksgiving that this holiday season, possibly our last together, would be one of our best, something for John to brighten his days, something to cherish for the rest of my life.  I made lists of possible activities, moments that could qualify as special, places we enjoy, meals I'd prepare - and I don't like to cook.  That weekend I took extra care to create festive touches in every room, even the bathrooms.  I spent an entire day just on the Christmas tree.  And crossed my fingers, hoping that my vision would become reality in the following weeks.  Hoping I'd hear him say that this was the best holiday ever.

Then, unexpectedly, unplanned, the telephone call from old friends, friends of three-plus decades.  Friends whose wedding we stood up for 32 years ago, friends whose conversations pick up where they left off even if months go by without contact.  Could they come out for a visit?  

They arrived last week.  And we did what old friends do - got caught up on each other's lives, shared wine, ate out, gossiped, laughed, reminisced, offered help without being asked for it, wished we lived closer.  And each of the three nights they were here, John commented to me, "This was such a nice day."  

Each day was a nice day, but I will cherish one in particular.  The two men went off for the day, a special treat for John, a day to spend with this man who in many ways has been as much a younger brother as a friend.  A chance to say things he might not say to me for wanting to protect me.  A chance to say what each needed to say in case this would be the last time they saw each other.

And they did just that.  When I asked John what they had talked about, at first he answered simply, "Love."  And then, "Of our love for one another and our special bond and how much I have touched his life." And then, "I cannot tell you what that meant to me.  To know I made such a difference to such a good man."  

There are other memories to create this holiday, but we have already had our Christmas.  John's days are brighter, I will always remember our conversation and cherish the man whose kindness and support made it possible.  A very good day, indeed.

*If you found this helpful or know someone who might, please share and like my page.

Reflections on Christmas Past

"Christmas is a season not only of rejoicing but of reflection."

~  Winston Churchill

I woke the other day with the sudden realization that this is my 76th Christmas and a flood of childhood Christmas memories washed over me.  For no apparent reason.  No dreams that I could recall.  No family traditions binding me to the past.

Then again, I have been decorating with a vengeance and friends have called to say they will be visiting.  And I have indulged in more than a few Hallmark holiday movies.  You know the ones, filled with romance and fantasy, ideal families and happy endings.  Simple plots and enough good cheer to last all year.

Our family was not filled with good cheer.  Money was tight. Relations could be strained.  But, somehow, we were at our best at Christmas.  

I loved watching my mother bake cookies for weeks starting right after Thanksgiving.  Enough chocolate chips and pecan snowballs, Spritz and sugar cookies, pinwheels and ladyfingers to fill the turkey roasting pan and several large bowls.  All made with real butter and leaving an aroma that filled the house for weeks.  Enough to give packages to all the family who came to visit.  And they came - all six brothers of my dad, and the two brothers and a sister of my mom, and their children.  They flowed in and out for days.

I loved decorating the real tree, purchased only a week or so before the holidays and laden with family heirlooms and silver tinsel that had to be layered a string at a time - I remember feeling so grown up when I was finally allowed to do so.  And the cards, checking the mail every day to see if we received a card from someone Mom had sent one to, her cards signed in red ink for the season.  She would read them, looking for a message, and then tape them to the archway to the living room.  And count them, every year.

The other sure sign of the season - the music.  Not only did Mom enjoy the traditional Christmas carols, (well, I think Rudolph was tolerated), but once we attended Catholic school, I sang in the church choir.  And Midnight Mass was the second time Dad could be dragged to church, Easter being the other.  Such a treat to get "dressed up" and sing before my parents.

And of course, the food.  Both Mom and Nonna were great cooks.  We celebrated Christmas Eve with Nonna who made pizza, from scratch naturally, and fried the leftover dough and rolled it in sugar, a treat for the grandkids.  Then, returned for Christmas Day to a feast that took days to prepare and almost as long to clean up after.

Gifts were simple - coloring books and crayons, puzzles, roller skates, a game.  And always pajamas and for me, and later my baby sister, a dress that Mom sewed.  Gifts that appeared while we were at Nonna's.  Gifts that I discovered Mom and Dad had bought when I finally noticed that Santa's name was always signed in red ink.  Gifts that were given and received with love and appreciation.

We were at our best at Christmas.  I think I'll bake cookies this year.

My Hero

"You must bear losses like a soldier, a voice told me, bravely and without complaint, and just when the day seems lost, grab your shield for another stand, another thrust forward.  That is the juncture that separates heroes from the merely strong."

~ Margaret George, The Memoirs of Cleopatra

I admit it, I'm addicted to quotes.  I can spend hours trolling quote sites whenever I get interested in a topic, but especially when preparing to blog.  And I did so when I decided to post this week on the topic of loss.  Because loss is ever present in our lives these days.  Not just the constant presence of the Ghost of Christmas Future, but the onslaught of loss that John has been experiencing of late.  

I set out to find a quote that might capture the feelings I have experienced as I watch him. My concern as I see him walk more slowly, tire more easily, require still another transfusion.  The sorrow I felt when he recently divested himself of his business, his "baby" that he nurtured for almost 30 years.  The heartbreak of watching him sell his car, accepting that the progression of his macular degeneration necessitates my chauffering.  The loss of stamina and energy, the loss of a piece of his identity, the loss of freedom and independence.  Loss upon loss.  I hate this for him.

And then I came upon the above quote and literally, in the moment, realized that this is how John thinks about loss and that the feelings I need to hold onto are my profound respect and gratitude for how he is managing his.  For he doesn't complain, doesn't even see complaining as a choice.  He takes life a day at a time, reorganizes quickly, and moves forward as best he can with amazing agility and dignity.  

I have often described my husband as resilient or persistent.  Strong.  But now, heroic.  My hero - and he will never lose that.

 

Cherish Is the Word

The word cherish is in my reading vocabulary, but not much in my speaking or writing.  Oh, I had promised it would be 15 years ago when I fought breast cancer and realized how many people cared about me.  When I noticed how much I hadn't noticed.  When I vowed I would be more present, more attentive, more grateful.  When I realized how much I had to not only be grateful for, but to cherish and cherish deeply.  For, to be grateful for a red rose or a pretty sunset, to be glad a friend called can become an intellectual exercise, a momentary acknowledgment, a good habit, but a habit nonetheless.  

My intention was confirmed and reaffirmed when, two years later, John was diagnosed with non-Hodgkins, and he received his stem cell transplant.  And survived.

I'd like to say I've lived the dozen or so years since then having kept my promise to myself, but I haven't.  I became distracted, caught up with retirement, and moving, and planning and preparing, more everyday tasks and chores.  I didn't even catch myself up short when John was diagnosed again a year ago.  After all, more tasks to get our "house in order."  More planning and preparation.

Then, last weekend a series of sweet, small events gave me pause.  Telephone calls from old and new friends to see how we are holding up.  To remind me they are here for us.  A visit with dear friends who were about to move.  And another from friends we left behind when we moved.  Hugs and words of endearment and encouragement.  And tears that flowed for days - with sadness and gratitude.  So much, so many to cherish.  How could I have forgotten?

Why does it take a crisis for some of us to remember?  To cherish what we have now.  To cherish deeply what we have now.

When You Need Somebody - Part II

It's been a few days since we've returned from  MD Anderson Cancer Center in Houston.  Although we've made this trip many times, this was especially draining - physically, mentally and emotionally.  Not just because we're older or that this cancer John is fighting is currently incurable, but also because we're more sensitive to the pain and grief around us.  And as this center is the foremost of its kind in the country, perhaps in the world, the presence of pain and grief is profound and palpable. Not only do they deal with the most severe and rarest cases of cancer, but the patients they see are younger and younger.  It's not unusual to meet someone who is caring for a young son or daughter with leukemia or to turn a corner and see a toddler with a bald head, wearing a mask and pulling a tiny chemo caddy.  

But the trip was also draining emotionally because I was so much more sensitive to the small, spontaneous acts of kindness from strangers that I hadn't thought of before now as a form of support. Small moments of generosity and consideration when I least expected it -the two women who came up behind me to push John's wheelchair when they saw me pause, concerned it would get away from me down a ramp.  Women I didn't know, didn't ask.  Or the people who came out of nowhere to hold open the elevator for us or just smile when we passed.  The shuttle drivers who remembered our names, the various service people who exhibited remarkable patience and compassion as we, and others, fumbled for change, or couldn't find what we were looking for.  The nurse practitioner who double checked her answers to reassure us that she had provided the right information (even calling us at 10 p.m. with additional information to allay some of my concerns).  

Most of all, however, it was the conversations we had with other patients and their caregivers as we waited for tests and doctors' appointments. Intimate, honest conversations about diagnosis, prognosis, resources, fears, worries, frustrations.  Conversations too painful, too frightening for many folks, but for those of us in the midst of these challenges a strange relief.  We are not alone.  We are not weak because we are afraid.  We are not demanding when we fight for those we love.  It is not too much to ask for dignity and respect.

And it never ceases to take my breath away when someone who is already fighting for their life or the life of a loved one, someone we've just met offers to include us in their prayers.

So to the list I started in my previous post, I will add these lessons I am learning about support ~

~ Support comes in many different packages.  Physical help can be the easiest to find, especially if you have the financial resources, or can provide it yourself.  Intellectual support is as important, maybe more so for some people. Then there's emotional support, the people who can provide compassion and care, who know how to listen and just be there with and for you, with whom you can cry, but equally with whom you can laugh.  And -

~Support can come from the most unexpected places and in the smallest acts of kindness. 

Little Things Mean a Lot

Recently, I posted on Facebook -

"A day of simple pleasures...cutting roses in our backyard, a lovely lunch with a fine friend (and a crepe and creme brulee to boot), finding a tiny treasure for my office, an afternoon nap, and a bowl of popcorn while watching the World of Dance with John, who's had a good day too. And off to bed with a good mystery - I'm a happy camper."

I doubt I would have written something like this 20 years ago.   Is it because my world has become smaller and more confined?  Is it because our lives have become consumed by handling more important things?  Is it because the bigger issues in my life are looming as so beyond my control? So far beyond my control that to pay attention to the little things is a matter of survival? 

Or is it simply because I'm older and wiser? Which, of course, is the explanation I prefer!

No matter.  Whatever the reason or reasons, 

• having a good piece of chocolate, well anything chocolate
• seeing a movie with a friend
• watching The Voice or So You Think You Can Dance with John, critiquing the whole way through
• taking the time to enjoy spectacular coral desert sunsets
• journaling on the courtyard chaise in the morning when the only sound that interrupts my concentration is our friendly pair of mourning doves
• laughing at a sacrilegious Facebook post, well laughing in general
• cleaning out a drawer or shelf - I can hear the disbelief now - "you find that pleasurable?" I do, I do.
• watching a baby play, whether a human baby or a puppy or a kitten, a baby
• reading good writing
• hearing John laugh
• holding hands
• learning how to do something new, but especially anything on the computer - John can hear my yell of triumph anytime I figure out something for myself.
• receiving an e-mail, message or phone call from an old friend
• hearing "I love you" and knowing it's true

I can regret that I didn't learn how important or how satisfying this when I was younger, but that's a waste of time.  I'd rather pay attention to these little things.

Help Wanted

I went to a support group for the caregivers of cancer patients yesterday - the first support group of its kind that I've ever attended.  I almost didn't go.  Used all the reasons I've used historically. "I'm not a group person. I'm strong enough, smart enough, I ought to be able to handle this on my own. I don't know these people.  We've done this before, my own cancer, John's non-Hodgkins lymphoma, his skin cancers."  Reasons I've used to avoid asking for other kinds of help.  Reasons I've used to deflect help when it's offered.  

I had the postcard inviting me to attend in my purse, just in case I would decide to check it out. But first, brunch with a friend, herself in the throes of cancer.  As we chatted, I heard myself sigh a sigh of relief when she told me that she was getting the counseling support I'd been encouraging for months.  I heard myself say, "in such extraordinary times, even the strongest, most capable of us need extraordinary help."  And in that moment, I decided.

Now, I need to admit that I still questioned myself the entire way there, almost backing out when I saw the door to the meeting room had been closed.  And I can't share what happened there, other than to say that the topic was emotions, the support was great, the group leader skillful as well as compassionate, and I will be returning next month.  Most important for me, however, was coming home to reflect on how I think about asking for help and the possible consequences for both John and me.

To help me clarify my thoughts last night, I turned to David Whyte's Consolations, the extraordinary volume of his reflections on the underlying meaning of everyday words, and there was the essay, 'Help', underlined and tagged.

• "Help is, strangely, something we want to do without, as if the very idea disturbs and blurs the boundaries of our individual endeavors, as if we cannot face how much we need to go on."  
• "Not only does the need for help never leave us alone; we must apprentice ourselves to its different necessary forms, at each particular threshhold of our lives.  At every stage we are dependent on our ability to ask for specific forms of help at very specific times and in very specific ways."
• "Every transformation has at its heart the need to ask for the right kind of generosity."
• "It may be that the ability to know the necessity for help; to know how to look for that help and then most importantly, how to ask for it, is one of the primary transformative dynamics that allows us to emancipate ourselves into each new epoch of our lives."

Underlined and tagged, read and reread.  But understood this time more deeply, more profoundly.  For this is an extraordinary time -  we have other friends who need our help even if only to listen, even as we are pressed to help each other, and every day and virtually every hour we receive phone calls and e-mails requesting support in some form - surveys, petitions, more money.  Every day and virtually every hour a message appears on the TV or computer of someone, some group in need.  

And we are older, we have less energy, we have decisions to make with less information than we want or need, less assurance that our decisions can make a difference.  

So, duh!, (ok, not very literate), although I may be strong, and I may be intelligent, and I may have faced other challenges well, this is a new challenge in a new environment, at a different time and place, at a new threshhold.  So, I want to go back to the drawing board and determine the very specific forms of help I/we need, not just physically and logistically, not just intellectually but also emotionally.  I want to determine who can best provide that help for me and for us - a friend or a professional?   And I need to gather my courage and, yes, humility and ask.  

For I believe that most people are willing to help, but they need to be asked and asked specifically. They are not mind readers.  And most people will be honored to be asked, especially if you have helped them.  And most people will feel acknowledged for their competence and caring, just as we are when we are asked for help that we can provide.  At least most of the people I know.

I have placed Consolations on my bedside table, beneath the tablet on which I've begun my list of specific requests for help.  I've blocked out some time to work on this project, accepting that I will need to revisit it in the weeks, the months and, hopefully, the years ahead of us.  For, "even in the end, the dignity of our going depends on others' willingness to help us die well; the sincerity of their help often commensurate to the help we extended to them in our own life."

And, yes, I will be going to the next support group meeting.

Looking for the Silver Lining

For as long as I can remember, song lyrics have popped into my head at the strangest times - a chance remark, a memory, someone's story, or even for no apparent reason.  I'm used to it.  Have come to just let it be when it happens, and trust that if there is a meaning or reason for its appearance, eventually I will make the connection.

Given both the current political climate and our personal challenges, it hasn't surprised me, therefore, that "Look for the Silver Lining" would be echoing in my head for days now.  "Look for the Silver Lining", for folks who haven't heard of the song, was introduced to the world in 1920, made popular by Judy Garland in 1945 and revisited most recently by Tony Bennett in 2015. And though many people may not know the tune or lyrics (which I include later in this post), the exhortation to "look for the silver lining" has become a common phrase used to support people through trying times. 


So, I've taken time to look for the silver lining in John's illness.  Clearly, we would much prefer not to be fighting cancer yet one more time, not to be facing something currently incurable, hoping that a breakthrough will occur, will be offered the next time we see the doctor.  We would much prefer that John have the energy and stamina he used to have. We would prefer he not need regular blood transfusions and chemo.  But having said that, there are other very real, very special side effects that we might never experience without this challenge, and that's the silver lining.  

Of course, there is the obvious - we are more present in the moment, more conscious of how we speak to each other, how we spend our time, the choices we are making and need to make.  As we have been through other crises, yet seem to forget once the crisis is past. We are also more affectionate, more intimate.  More so than we have ever been.  With little gestures, and at odd little moments.  More appreciative of the life we have had together, the homes, the friends, the memories.  We enjoy the little things, the simplest things, like laughing at Paul Harvey's antics on Family Feud, or deciding which judge a contestant should choose on The Voice, and are conscious, in the moment, of our enjoyment.  Then there are the everyday things too easily taken for granted, like the desert sunset or a glass of B and B after supper, the call or e-mail asking how we are doing, the thoughtfulness of the service people who have taken up the slack for us, a favor we do for each other without being asked.

I'm sure there are others who have learned to live their lives this way without incurring a disease or experiencing a disaster.  I'd like to think we might have evolved this level of consciousness and appreciation over time, but I'm not sure that we might just as well drifted along, most days only semi-conscious.  I also am aware that some people never see the silver lining, never look.  For us, this is the paradox, the contradiction, the both/and.  We are fighting for John's life and we are blessed.

Look for the Silver Lining

                            

Look for the silver lining

Whenever a cloud appears in the blue

Remember somewhere the sun is shining

And so the right thing to do is make it shine for you

A heart full of joy and gladness

Will always banish sadness and strife

So always look for the silver lining

And try to find the sunny side of life